Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for August 2019

Blood results help please, increased asesd aches and pains.

Please would someone have a look at my blood results? I’ve had increasing aches and pains in joints recently. I had been taking vitamin D but stopped at GP’s...

Please would someone have a look at my blood results? I’ve had increasing aches ...

Numbsew

•5 years ago

3 Replies

Night Time Urination

Hey everybody, Anybody wake up multiple times a night to urinate even with cutting liquids hours before bed? Before b12d I used to sleep through the night no...

Hey everybody, Anybody wake up multiple times a night to urinate even with cutti...

lownskater52

•5 years ago

25 Replies

New symptom

Suddenly came over dopey and very tired. Like I'd been drugged or having an anesthetic. (Not on any medication) fell asleep in a horrid way. Out for about an...

Suddenly came over dopey and very tired. Like I'd been drugged or having an anes...

Nackapan

•5 years ago

22 Replies

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PA and short of breath

I’m on treatment for last 16-17 months.. with any activity or exertion I become short of breath and feel like to give up that thing, does anyone experience...

I’m on treatment for last 16-17 months.. with any activity or exertion I become...

Gunj_redjem

•5 years ago

39 Replies

Do I need a B-complex supplement to balance injections?

Do you need a B-complex supplement to balance out weekly injections?

deepocean

•5 years ago

5 Replies

Can I use my methylcobalamin ?

My methylcobalamin hasn’t come in the mail and I am due my injection. I have last months still in the refrigerator but it expired about 3 weeks ago. It’s only...

My methylcobalamin hasn’t come in the mail and I am due my injection. I have las...

Freezeframe

•5 years ago

4 Replies

Active b12 test

Does anyone know how long after a B12 injection this test is accurate? I had a serum b12 blood test in October 2018 and have been on injections since.......

Does anyone know how long after a B12 injection this test is accurate? I had a ...

Nackapan

•5 years ago

2 Replies

Active B12

I know not to take notice of high readings for serum B12, but does the same apply to an Active B12 blood test. Is this useless to do after a diagnosis of PA...

I know not to take notice of high readings for serum B12, but does the same ap...

nightingale-56

•5 years ago

14 Replies

B12-Throat Congestion-Can it be related?

I have had thick throat mucus for many years. All of the tests and exams have shown no problem; not digestion, no allergies, no structural abnormalty, no...

I have had thick throat mucus for many years. All of the tests and exams have sh...

RICHLEU

•5 years ago

7 Replies

Finger/Feet numbness

Hey everyone, Just noticed I'm developing some slight numbness in my right thumb which has been consistent along with some occasional tingling/nerve pain in...

Hey everyone, Just noticed I'm developing some slight numbness in my right thumb...

lownskater52

•5 years ago

14 Replies

Light and noise sensitivity

If yiu suffer with this. Incase some are not aware Morrisons do 1 hour where they dim the lights and turn any noise or music right down. Different days and...

If yiu suffer with this. Incase some are not aware Morrisons do 1 hour where th...

Nackapan

•5 years ago

2 Replies

Is it worth finding out the cause?

I've had PA for a couple of years and things have settled down into a good routine of injections that are keeping me feeling well. When I was first diagnosed...

I've had PA for a couple of years and things have settled down into a good routi...

Hologram

•5 years ago

12 Replies

big bones

Hi everyone,I was reading a recent post with a link to patient info that had 'b12d and acromegaly'in the same sentence,this got me thinking about a DEXA scan I...

Hi everyone,I was reading a recent post with a link to patient info that had 'b1...

flosslechops

•5 years ago

4 Replies

Low zinc in autoimmune atrophic gastritis

Is having low zinc and high copper typical of autoimmune atrophic gastritis? Does the gastritis affect zinc absorption in particular or is it not correlated?...

Is having low zinc and high copper typical of autoimmune atrophic gastritis? Doe...

Hidden

•5 years ago

2 Replies

Medical notes destroyed news

I have just read and I quote from the BMA all other health records to be retained for 8yrs after conclusion of treatment or death. well I have emailed this...

I have just read and I quote from the BMA all other health records to be retaine...

lesbud1

•5 years ago

3 Replies

What happens to the methyl component when methylcobalamin breaks down, whether in a vial or after injection?

Trying to get a better grasp on how methylcobalamin "works". I have read that, since methylcobalamin is so unstable, often when what we think we are injecting...

Trying to get a better grasp on how methylcobalamin "works". I have read that, s...

EllieMayNot

•5 years ago

3 Replies

Need an English version to order from Germany

Am rubbish at German and wondered is there a supplier of B12 in Germany that I can order in English.I am sure I am not the only one out off ordering for this...

Am rubbish at German and wondered is there a supplier of B12 in Germany that I c...

wobblw

•5 years ago

5 Replies

Petition

I have started a petition to stop NHS hospitals destroying notes after 8yrs of no contact with them. please read and sign if you agree. Change.org. thanks...

I have started a petition to stop NHS hospitals destroying notes after 8yrs of n...

lesbud1

•5 years ago

32 Replies

Does neuropathy get worse before it gets better when starting b12 injections?

Hi, I'm going to start b12 injection soon to hopefully help with peripheral neuropathy I'm currently having. I've heard that the neuropathy could worsen at...

Hi, I'm going to start b12 injection soon to hopefully help with peripheral neur...

blueivy_4

•5 years ago

7 Replies

Neurological symptoms

I know I ask a lot of questions but this forum is my only hope as you all are experienced... is there anyone whose severe neurological symptoms r totally...

I know I ask a lot of questions but this forum is my only hope as you all are ex...

Gunj_redjem

•5 years ago

5 Replies

Medical notes update

They have written me an email and apparently it is their policy to destroy them after 8yrs if you have not had treatment from them. I am shocked and alarmed...

They have written me an email and apparently it is their policy to destroy them ...

lesbud1

•5 years ago

5 Replies

Medical notes

I am sick to the core. I have just found out that a NHS Trust has destroyed my medical notes. They said they were over 8yrs old and they have been destroyed....

I am sick to the core. I have just found out that a NHS Trust has destroyed my m...

lesbud1

•5 years ago

28 Replies

b12 and pain?

I can just about manage between two-weekly injections of B12, but since I tore a tendon and have been in a lot of pain, I find I am sinking after one week....

I can just about manage between two-weekly injections of B12, but since I tore a...

jillc39

•5 years ago

8 Replies

Update on high b12

I've posted before re my high b12 level & had some really helpful replies but just couldn't get to the bottom of it & constantly had the shutters pulled down...

I've posted before re my high b12 level & had some really helpful replies but ju...

Irismay

•5 years ago

44 Replies

sharp boxes

Hi can you tell me what you do with your sharps bins when they are full please?

lesbud1

•5 years ago

6 Replies

Pronounced Normocytic but not anemic

Hello; Recently I was told that I was normocytic but not anemic. Consequently no blood work was ordered, Advised to stay hydrated and drink gatorade. I went...

Hello; Recently I was told that I was normocytic but not anemic. Consequently no...

Lyntwo

•5 years ago

11 Replies

Hot feet

I have hot painful feet .Hot. Scarlet soles to my feet mainly at night..Ankles and feet very painful when walking.Hands also have hot palms.I don’t doubt this...

I have hot painful feet .Hot. Scarlet soles to my feet mainly at night..Ankles a...

Mrsannabbott

•5 years ago

28 Replies

B12 absorption issues stemming from poor sleep quality and deficiencies with Vitamin D and other b vitamins.

Wondering how many of us who tested positive for pernicious anemia also tested low for vitamin D as well as all the other B vitamins. I found articles and...

Wondering how many of us who tested positive for pernicious anemia also tested l...

research4oscar

•5 years ago

18 Replies

MMA Test...is urine or blood best?

I am going to get a private MMA Test done to try and clarify if I have a B12 deficiency as my Dr refused to test m. I have a few questions... Should I buy...

I am going to get a private MMA Test done to try and clarify if I have a B12 de...

jamjar67

•5 years ago

4 Replies

Confused by blood test results

Hi there, new to this forum! Had Hashimotos for about 15 years, bloods up and down, now fully gluten free. At last GP blood test was told to reduce...

Hi there, new to this forum! Had Hashimotos for about 15 years, bloods up and do...

PurpleThyroid

•5 years ago

3 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for August 2019

Blood results help please, increased asesd aches and pains.

Night Time Urination

New symptom

PA and short of breath

Do I need a B-complex supplement to balance injections?

Can I use my methylcobalamin ?

Active b12 test

Active B12

B12-Throat Congestion-Can it be related?

Finger/Feet numbness

Light and noise sensitivity

Is it worth finding out the cause?

big bones

Low zinc in autoimmune atrophic gastritis

Medical notes destroyed news

What happens to the methyl component when methylcobalamin breaks down, whether in a vial or after injection?

Need an English version to order from Germany

Petition

Does neuropathy get worse before it gets better when starting b12 injections?

Neurological symptoms

Medical notes update

Medical notes

b12 and pain?

Update on high b12

sharp boxes

Pronounced Normocytic but not anemic

Hot feet

B12 absorption issues stemming from poor sleep quality and deficiencies with Vitamin D and other b vitamins.

MMA Test...is urine or blood best?

Confused by blood test results

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