New symptom: Suddenly came over dopey... - Pernicious Anaemi...

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New symptom

Nackapan profile image
22 Replies

Suddenly came over dopey and very tired. Like I'd been drugged or having an anesthetic. (Not on any medication) fell asleep in a horrid way. Out for about an hour.

Is this familiar to anyone? I'm due a B12 injection in 4 days. I've never been able to doze in the day or sleep on a journey in the past. Only when really ill do i drift. Really thrown me.

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Nackapan profile image
Nackapan
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22 Replies
pvanderaa profile image
pvanderaa

Sounds like brain fog.

I can get this symptom along with falling asleep after eating an apple. But more typically about 24 hours after gluten or dairy contamination.

It goes away after I have a poo to empty the large intestine.

Check what you ate yesterday.

Nackapan profile image
Nackapan in reply to pvanderaa

I didnt eat anything different. Alot of tomatoes as a glut. Avocado. Tortillas. Bowl of mixed nuts. Ice cream. Quiche and potatoes. Am on ferrous fumarate but 10th day?? Such a strange feeling to fall asleep is quickly like someone had clicked their fingers . Interesting about your reaction. A family member has cut out diary gluten fructose diary and is alot better for it. Have to ask if they had this symptoms. Thank you for reply

Sleepybunny profile image
Sleepybunny in reply to Nackapan

Hi,

Are you sensitive to dairy products eg milk in quiche, ice cream?

Nackapan profile image
Nackapan in reply to Sleepybunny

No the only thing I dont have now is chilli also have less garlic. Infact when I was very poorly at start with virtigo ect I really fancied milk and yoghurt. Later read good for you on that state as are almonds. I don't think food related. Thus condition gives such odd symptoms. Scary at times. Thanks for your thoughts

EllieMayNot profile image
EllieMayNot

Had a similar experience last week. Not a regular thing for me but it happens from time to time. I'm always tired so I don't know why sometimes I just seem to drop off in the middle of the day when my plan was just to sit down for a few minutes on the couch.

Nackapan profile image
Nackapan in reply to EllieMayNot

Not happened before. Wasn't pleasant! I have fatigue too . Never knowneed anything like it. Let's hope we pick up soon.

buster_uk profile image
buster_uk in reply to Nackapan

Yup this has been me for the last two weeks. One min awake then out of nowhere come over very tired and have to sleep. Like been drugged...

Hate it.

Nackapan profile image
Nackapan in reply to buster_uk

It is horrible. Wonder what's going on?

New to me.

EllieMayNot profile image
EllieMayNot in reply to buster_uk

That is the best description for it, like being drugged.

Nackapan profile image
Nackapan in reply to EllieMayNot

Yes . How I described it too

deniseinmilden profile image
deniseinmilden

Something else I'd forgotten about!

It used to happen so often I got almost used to it. I used to say it was like "someone had switched my lights out"!

I started doing it at 6th form college over 30 years ago - I used to go out so fast and soundly I would fall off my stool in my science classes and not wake up when I hit the floor. Once they knew I did it, someone would just pick me up and put me on the back bench until I woke up. When it happened nothing would wake me up!

I just guess I have to be thankful it never happened when I was driving or on a horse (although I did used to pass out on my pony when my heart was silly but that was different and I didn't drive then).

I did used to do it when I was milking though, especially if standing with a cow to keep her calm for some reason... and at all sorts of other times. It's a pain in the ! if you're shopping or something like that.

I used to wonder if it was what being hypnotised was like because that was how quickly I could go out!

Thank you for posting - it's helped me realise how much better I am these days - a good advert for plenty of B12 and supporting supplements, I guess!

Unless you can find an alternative cause, I just hope that in time and with enough treatment it will resolve itself for you too!

Nackapan profile image
Nackapan in reply to deniseinmilden

Thanks. That is reassuring. As never experienced anything like it before. Cow must've been shocked! ! Or put out if needed milking. I've had so many nasty or strange or painful symptoms I really thought I'd get no more new ones. Some have give si hope this one goes or very infrequent.

I get this all the time. Tiredness hits me like a ton of bricks and very suddenly. If I can, I take myself to bed for an hour or two.

Nackapan profile image
Nackapan in reply to

I've never had such an awful feeing like it before. I used to work 12 hour night shifts and it s worse than at the end of a shift.

I do have to take to my bed far too often. Mainly to avoid headaches and not use my eyes or get the sizzling /tinnitis to calm. I must be improving as I'm getting restless not being able to do anything. Many thanks for your reply. Hope you are okay.

in reply to Nackapan

Ah you know, good days and bad days. Sleep sometimes seems to be the only thing to do. I hope you're feeling better.

Cherylclaire profile image
CherylclaireForum Support

I used to get home from a supermarket shop, yawning all the way home with car window open, throw everything into the fridge as quickly as I could, throw my glasses down on coffee table and fall asleep on the sofa immediately for 3-4 hours. It was like playing beat the clock, a race against overwhelming fatigue.

No stopping it and I could feel it coming- it felt like very small iron filings flipping over and over just under my skin, trickling down my arms and legs as if I had magnets in my fingertips and soles of my feet. Not a nice feeling at all.

And then BANG, I'd be out for the count.

Now I don't get that at all (apart from the yawning all the way home ).

I still keep a record of symptoms for this reason. Good to look back, because you forget quite how bad it was.

Nackapan profile image
Nackapan in reply to Cherylclaire

Thank you. I realise that already. I look back on to last Christmas and I only made an appearance to eat briefly . I was virtually bedbound. Yes keeping a diary . Can't get over just how many symptoms. Still a long long way to go but expectations/goals are are lowering. I would like to watch tv, read a book and travel to see people. Glad to hear improvements were made for you. Actually I yawneed for the first time on months the other day. It felt normal!!

evilellie profile image
evilellie

That was my main symptom before starting injections, like someone was switching me off (or like an anasthetic as you say). It started coming back again after the loading injections when they switched me to 3 monthly, so I had to start self-injecting (the doctor of course implied that it couldn't possibly be B12 as everyone is completely fine with 3 monthly injections, I wasn't an exception etc...!)

Nackapan profile image
Nackapan in reply to evilellie

So how often to you self inject hydroxocobalamin?

I'm on 2 weekly injections. Does it still happen occassionly or has it stopped. ? My only symptoms looking back were severe tiredness but not falling t sleep as described even after a glass of wine! above and some headaches that was new to me (both put down to menopausal symptoms)

Then a dramatic collapse (first in life) couldn't get up. Crawled into house and had my first virtigo attack. Followed by vile neurological symptoms. How long have you had PA or b12 defiency. Sorry all the questions. So many of us have so many symptoms. Like a roller coaster

evilellie profile image
evilellie in reply to Nackapan

I self inject to make it up to monthly injections. I sometimes take sublinguals in the last week before self-injecting. Not quite sure I have it right as I'm definitely quite tired a lot of the time, but don't have any of the other symptoms anymore. It's really hard to work out what is the best way of managing it, especially as it doesn't seem that well understood (like many auto immune things I guess).

I've had PA for 3 years. It came on really quickly over a couple of months (which is unusual I think) I just started getting really bad headaches and this bad falling asleep thing, plus I could sometimes hear my heartbeat in my head (very weird), and was totally out of breath and tired etc whereas I am usually very active. I'm not sure if the quick onset means that I didn't do lasting damage (hopefully) and it was quicker to mostly resolve itself. My grandma also had PA from a relatively young age, so I think I was genetically predisposed to it.

MontyW profile image
MontyW

I've came to this thread after reading Nackapan's reply to my first post on this forum. Although I'm at the early stages of dealing with my PA I too have this almost immediate loss of energy that will mean me needing to sleep or just falling asleep, and its random.

I was hoping to see a pattern of tiredness after execration or after a large meal, but it seems to be random. Yesterday mid-afternoon whilst watching a film (I'm on holiday :-) boom I was asleep. 40 minutes later awake but in fog. In my original post I had forgot to mention one episode that concerned me.

I'm an early starter at work and I was in the office at my usual 7.00am start. I had a meeting to go to that involved driving on the motorway. When driving I felt I needed to stop as I was tired (at 10.30am!) - I stopped at a service station and set my phone for 15 mins and had a nap. 80 minutes later I woke up. I got to the meeting and I couldn't remember the first name of the people I had the meeting with - I'd been talking to them on a regular basis for weeks.

So, I too get these episodes of 'zonking out'.

Nackapan profile image
Nackapan in reply to MontyW

Yes it's very disconcerting with no patterns. Tank goodness toy stopped driving. I get blanks too .thrn or comes back. Almost like a kink in a neuRon. /messaging pathway.

Not happened in same way for last few weeks. I have been going to bed so early though as light sensitive.

Who knows...trying not to get concerned or try to work it out as no rhyme or reason at times

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