Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for August 2019

Intrinsic Factor Antibodies Gone.

My doctor says I have no more intrinsic factor antibodies in my latest blood work. Initial levels were 1.2 (range 0-1.1) What does this mean? I don’t have a...

My doctor says I have no more intrinsic factor antibodies in my latest blood wor...

tradkita

•5 years ago

4 Replies

Questions regarding cofactors

Several questions regarding cofactors (hopefully that’s the right term). Can you you have trouble absorbing folate regardless of levels? Like with PA my B12...

Several questions regarding cofactors (hopefully that’s the right term). Can yo...

tradkita

•5 years ago

5 Replies

folate deficiency/hypothyroid

What folate supplement do people take Folic Acid or Methylfolate?

ninja1

•5 years ago

2 Replies

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Weak grip

I have been on treatment for 16months.. I can’t hold things tightly ie especially cutleries does any one experience the same

I have been on treatment for 16months.. I can’t hold things tightly ie especiall...

Gunj_redjem

•5 years ago

2 Replies

Leg symptoms - help!

Hi all, I have had many symptoms on and off over the past 3-4 months and the latest is calf tightening/cramp mostly in my right leg. Seems more noticeable at...

Hi all, I have had many symptoms on and off over the past 3-4 months and the lat...

avock26

•5 years ago

21 Replies

Has anyone got copper imbalance or deficiency along with B12 deficiency?

Sorry, another question, but I'm new to this site and have struggled for so long without being able to talk to anyone who understands what its like and can...

Sorry, another question, but I'm new to this site and have struggled for so long...

montague53

•5 years ago

3 Replies

Is my folate normal ?

Is my folate normal not sure how to read results, i also have hashimotis

sbadd

•5 years ago

2 Replies

GP frustration

I feel I am none the wiser about my B12 deficiency and why it is being caused. Ive had quite a few blood tests, but reading through the forum im finding things...

I feel I am none the wiser about my B12 deficiency and why it is being caused. I...

Luac

•5 years ago

8 Replies

B12 shots

Hi Just a quick question. Does anyone else take their B12 injections daily? I started mine as daily just for a week as I felt so ill that I thought a week...

Hi Just a quick question. Does anyone else take their B12 injections daily? ...

LuluCops

•5 years ago

10 Replies

Low White Blood Cells/Neutrophils with B12D? Understanding my blood tests.

Hey everybody, Thanks again for all of the support recently. I have a few more questions about anemia, white blood cells, and recovery. So I have attached my...

Hey everybody, Thanks again for all of the support recently. I have a few more ...

lownskater52

•5 years ago

5 Replies

Help!

I am in about week 6 of weekly self injections. Usually for a few days after I have increased fatigue and some increased tingling in legs, arms, hands, feet,...

I am in about week 6 of weekly self injections. Usually for a few days after I h...

sammisboys

•5 years ago

11 Replies

Please help: Gastrointestinal symptoms

27 year old female, diagnosed with anti-parietal cells 6 years ago. I'll try to keep it as brief and succinct as possible ... I have severe...

27 year old female, diagnosed with anti-parietal cells 6 years ago. I'll try to ...

FelineGhost

•5 years ago

23 Replies

PPI and Diabetes Drugs

Hi, I put most of this info in recent replies on forum but thought might be of interest to others. Curious to know if any long term users of these drugs had...

Hi, I put most of this info in recent replies on forum but thought might be of i...

Sleepybunny

•5 years ago

8 Replies

Longer the deficiency longer it takes to heal brain?

Is it trues the longer the deficiency longer it takes to heal...one of my frnd told me today (eg if I’m deficient for 7yrs approximately,it will take me 7yrs...

Is it trues the longer the deficiency longer it takes to heal...one of my frnd t...

Gunj_redjem

•5 years ago

6 Replies

Development of white spots! Anyone identify? Heard of any connection please?

Hi I am interested to hear if anyone has noticed any changes in skin due to PA? I am sure I read somewhere about the development of white spots on the skin...

Hi I am interested to hear if anyone has noticed any changes in skin due to P...

Minnskimoo

•5 years ago

25 Replies

Any hope

Can we overcome this sever deficiency let it take years but can we hope for 100% recovery even after years?

Can we overcome this sever deficiency let it take years but can we hope for 100%...

Gunj_redjem

•5 years ago

4 Replies

Mucus in throat

Was diagnosed with PA earlier this year. Past month or so, I wake up each morning with mucus in my throat. Anyone else experienced this with PA or is it...

Was diagnosed with PA earlier this year. Past month or so, I wake up each morni...

ickyrocket

•5 years ago

7 Replies

to late for a referral to hematologist?

I have finally managed to convince my GP to give me my B12 injections every six weeks (it wasn't easy!). however he now wants me to go and see a hematologist....

I have finally managed to convince my GP to give me my B12 injections every six ...

Somerset_UK

•5 years ago

4 Replies

No more cinema for me

My husband warned me but I really wanted to see the latest Tarantino film... We went anyway and I only got 3 hours sleep that night. The noise levels in the...

My husband warned me but I really wanted to see the latest Tarantino film... We ...

expatkerry

•5 years ago

14 Replies

First succesful self injection, looking for methyl folate to be taken once a week

Hi, I finally managed to get myself to self inject (Yay!). I was so fed up with travelling long journeys for this couple of seconds. I was wondering if there...

Hi, I finally managed to get myself to self inject (Yay!). I was so fed up with ...

Heidiv

•5 years ago

6 Replies

How much time nerves take to repair

17months back I was almost bed ridden with tremors,fainting spells, brain fog, dizziness, bad memory, bad migraines etc etc couldn’t even get up from bed......

17months back I was almost bed ridden with tremors,fainting spells, brain fog, d...

Gunj_redjem

•5 years ago

10 Replies

Just want to apologize and say thanks.

Hey everybody, Just wanted to offer a quick apologize and offer my gratitude. I know I've been writing all over this forum with questions and have been pretty...

Hey everybody, Just wanted to offer a quick apologize and offer my gratitude. I...

lownskater52

•5 years ago

29 Replies

B6 injections anyone

Hi I currently take B12 and B1 injections, my Naturopath Dr says I am not absorbing B vitamins well. I'm wondering if I could be B6 deficient also. Does anyone...

Hi I currently take B12 and B1 injections, my Naturopath Dr says I am not absorb...

montague53

•5 years ago

11 Replies

Holiday in Canada

My travel company say I must present a doctors note or repeat prescription if I want to take syringes for my B12 injections on holiday to Canada. The problem...

My travel company say I must present a doctors note or repeat prescription if I ...

226lowlane

•5 years ago

6 Replies

What neurological tests

Does anyone know what neurological texts are used to confirm a diagnosis of b12 deficiency?

Does anyone know what neurological texts are used to confirm a diagnosis of b12 ...

Damseltree

•5 years ago

5 Replies

Is it normal to feel wiped out day after taking folate 4 mg?

Hi, My dr has prescribed 4 mg of folic acid/week together with my weekly 1000 mcg Hydrocobalamin shot. I do prefer to take the folic acid once/week because it...

Hi, My dr has prescribed 4 mg of folic acid/week together with my weekly 1000 m...

Heidiv

•5 years ago

2 Replies

Update

Re my previous post that should read £38.00.

Stephanie6637

•5 years ago

Be the first to reply

What a rip off

My local network beauty therapists are now advertising Vit B12 injections at 38.00 per injection. I guess she is making a substantial profit.

My local network beauty therapists are now advertising Vit B12 injections at 38....

Stephanie6637

•5 years ago

27 Replies

PA and gym

Y do we daily wake up with symptoms though I inject twice a week... I can not inject EOD as it makes me feel b dizzy..? Is anyone with PA does gym? I joined...

Y do we daily wake up with symptoms though I inject twice a week... I can not in...

Gunj_redjem

•5 years ago

9 Replies

Can PA just disappear, even though you still suffer?

So, my nurse practitioner tested my intrinsic factor. I no longer have records of when I was diagnosed with PA about 6 years ago. Apparently, she did not feel...

So, my nurse practitioner tested my intrinsic factor. I no longer have records o...

PaintLadie

•5 years ago

15 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for August 2019

Intrinsic Factor Antibodies Gone.

Questions regarding cofactors

folate deficiency/hypothyroid

Weak grip

Leg symptoms - help!

Has anyone got copper imbalance or deficiency along with B12 deficiency?

Is my folate normal ?

GP frustration

B12 shots

Low White Blood Cells/Neutrophils with B12D? Understanding my blood tests.

Help!

Please help: Gastrointestinal symptoms

PPI and Diabetes Drugs

Longer the deficiency longer it takes to heal brain?

Development of white spots! Anyone identify? Heard of any connection please?

Any hope

Mucus in throat

to late for a referral to hematologist?

No more cinema for me

First succesful self injection, looking for methyl folate to be taken once a week

How much time nerves take to repair

Just want to apologize and say thanks.

B6 injections anyone

Holiday in Canada

What neurological tests

Is it normal to feel wiped out day after taking folate 4 mg?

Update

What a rip off

PA and gym

Can PA just disappear, even though you still suffer?

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