Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for August 2019

High b12 levels and pregnancy

As science says higher level of b12 in a mother has higher chances of autistic child..., is there any mother despite having higher levels the babies r...

As science says higher level of b12 in a mother has higher chances of autistic c...

•5 years ago

Ve

Does anybody else get numbness in their feet I get my injection every 8 weeks I have done for about 20+. Years. Regards Ve

Does anybody else get numbness in their feet I get my injection every 8 weeks I ...

•5 years ago

How long does it take for symptoms to go?

So I get my hydroxocobalamin injection every 12 weeks, this time I made it to about 11 weeks and started to decline rapidly. Gasping for breath, struggling to...

So I get my hydroxocobalamin injection every 12 weeks, this time I made it to ab...

•5 years ago

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High B12 reading

I have just received a very high B12 reading in a blood test taken abroad. I have cancelled my next 3 monthly B12 injection prior to seeing my GP to...

I have just received a very high B12 reading in a blood test taken abroad. ...

•5 years ago

Recent retest B12 over 1,000

My dr diagnosed me with PA in February he recently retested my b12 and did another MMA test, my b12 serum went from 300 in February to over 1,000 this month...

My dr diagnosed me with PA in February he recently retested my b12 and did anoth...

•5 years ago

Wrong Treatment...???

Hi, I was diagnosed on Tuesday with Pernicious Anaemia!! Complete shock as never even heard of it before!!. Dr left me feeling confused and scared as he seemed...

Hi, I was diagnosed on Tuesday with Pernicious Anaemia!! Complete shock as never...

•5 years ago

Self sourced B12 injections

After months of talking and wondering between us, being messed about by the NHS. Getting worse and neurological symptoms getting worse. We decided that we...

After months of talking and wondering between us, being messed about by the NHS....

•5 years ago

B12 deficency or not?

Was hoping someone here could offer some advice. My GP recently ran blood tests to exclude Pernicous Anemia and B12 deficiency (both of which have now been...

Was hoping someone here could offer some advice. My GP recently ran blood tests...

•5 years ago

Folic acid and Sudden onset of symptoms

Hi Everyone - I’m new to the group and have just been diagnosed with PA. My b12 blood test was 311 but I had strong neurological symptoms that went away with...

Hi Everyone - I’m new to the group and have just been diagnosed with PA. My b12 ...

•5 years ago

B12/PA test results, input please

I'm a 61 year old male who has had symptoms consistent with PA most of my life. Although I feel like crap most of the time, I have managed to keep fit/exercise...

I'm a 61 year old male who has had symptoms consistent with PA most of my life. ...

•5 years ago

Methylcoalmine b12 tablets

I read in a post I now cannot find that this form of b12 can give some people side effects? Have I got this right? I'm on B12 hydroxocobalamin injections but...

I read in a post I now cannot find that this form of b12 can give some people s...

•5 years ago

Feeling worse is it normal?

Was diagnosed with B12 deficiency last week. Received first shot last Monday did ok. Another shot last Thursday felt great. Another shot yesterday and my...

Was diagnosed with B12 deficiency last week. Received first shot last Monday did...

•5 years ago

B12 and disturbed vision

In 2018 I had v bad symptoms ie couldn’t concentrate,couldn’t walk, tremors, headaches, was on bed... couldn’t stand then was diagnosed with b12 deficiency.....

In 2018 I had v bad symptoms ie couldn’t concentrate,couldn’t walk, tremors, hea...

•5 years ago

Help. Methylcobalamin

So I took Methylcobalamin for ten days. I feel so scared because I feel like it’s making me feel so weird and anxious. Help I’m so scared. I have a nine month...

So I took Methylcobalamin for ten days. I feel so scared because I feel like it’...

•5 years ago

Help! Low Folate for 1 Year?

Hi I have had Abnormal levels of Serum Folate since September last year. Some blood results have been ‘undetectable’. I have tried Folic Acid but once I stop...

Hi I have had Abnormal levels of Serum Folate since September last year. Some bl...

•5 years ago

B12 deficiency : tongue, mouth (and apologies !)

I did say that I would show what the lovely ENT consultant described as "clearly B12 deficiency" - and also said that I was doing absolutely the right...

I did say that I would show what the lovely ENT consultant described as "clearly...

Forum Support•5 years ago

Symptoms worsen around period.

I'm 4 months into taking 5mg of sublingual b12 per day ( my Dr refuses to believe I am deficient so injections are out of the question) and on the whole my...

I'm 4 months into taking 5mg of sublingual b12 per day ( my Dr refuses to believ...

•5 years ago

Sinus issues

Since self injecting hydroxcobalamin 3 injections over 2 weeks, my long standing sinus issues have become far worse. Is this common? Tinnitus is through the...

Since self injecting hydroxcobalamin 3 injections over 2 weeks, my long standing...

•5 years ago

painful injections

I really hate to moan because I am so grateful for getting a shot of B12 every two weeks. BUT I find the injections SO painful. The nurse will only inject...

I really hate to moan because I am so grateful for getting a shot of B12 every t...

•5 years ago

B12 from Germany

Hi I know this has been asked many times.I now need to order to continue good health. Where is the best place to order from?I have heard Germany is best.Can...

Hi I know this has been asked many times.I now need to order to continue good he...

•5 years ago

Antibodys

Hello, my best friend yesterday in tupica blood test without any reason... Found TPO 504(normal range under 5)and Tg 7 (normal range under 5).. Tsh 1.2...

Hello, my best friend yesterday in tupica blood test without any reason... Found...

•5 years ago

can too much b12 cause blood in urine

i am passing blood in my urine is no infection is vissible by eye can high dosage of b12 do this

i am passing blood in my urine is no infection is vissible by eye can high dosa...

•5 years ago

Different handling for methyl vs cyano?

I take cyanocobalamin that a doctor prescribes. It doesn't sting. I take methylcobalamin from a US supplier (made in Hong Kong) and it stings like a -- ! I...

I take cyanocobalamin that a doctor prescribes. It doesn't sting. I take methyl...

Dopey-Grumpy-Sleepy

•5 years ago

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