Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for July 2019

Head tightness and pressure

Guys as I’ve mentioned in earlier posts ive has constant head pressure and tightness since 4 months with the odd headache here and there. I’m injecting...

Guys as I’ve mentioned in earlier posts ive has constant head pressure and tight...

KurupPrateek

•5 years ago

5 Replies

Aching/painful joints - could this be b12 deficiency

For the past week I've suffered with aching/painful joints, mainly ankles, knees, hips & soles of feet. I can't describe it but it's very uncomfortable....

For the past week I've suffered with aching/painful joints, mainly ankles, knees...

vikki24

•5 years ago

7 Replies

Neuro examinations

The copy of the letter from the neuro consultant states " reflexes were normal except the ankle jerks were just elicitable with reinforcement. Planters were...

The copy of the letter from the neuro consultant states " reflexes were normal e...

lesbud1

•5 years ago

3 Replies

Want to take advantage of all our features? Just log in!

B12 and iron deficiency link?

Just found this article. It suggests a link between B12 and iron deficiency. I thought it may be interesting. (I had B12 deficiency and iron deficiency at the...

Just found this article. It suggests a link between B12 and iron deficiency. I t...

GastritisB12

•5 years ago

17 Replies

NO/ONOO Cycle and Benefits of Hydroxocobalamin

Perhaps this article by Martin Pall, PhD explains why some need much higher doses than currently recommended and why hydroxocobalamin is the preferred form :...

Perhaps this article by Martin Pall, PhD explains why some need much higher dose...

EllieMayNot

•5 years ago

5 Replies

Why am I so tired?

Is it normal to feel so tired after all those b12 injections? I've slept for nine hrs overnight but wake extremely tired and it lasts all day. Why?

Is it normal to feel so tired after all those b12 injections? I've slept for nin...

buster_uk

•5 years ago

2 Replies

PAS Conference 2019

The PAS conference will be on 4th December in Cardiff. https://pernicious-anaemia-society.org/treating-pernicious-anaemia-getting-it-right-2019-conference/

The PAS conference will be on 4th December in Cardiff. https://pernicious-anaemi...

fbirder

•5 years ago

Be the first to reply

Re post on auditory hallucinations

I found this article helpful as well. https://universityhealthnews.com/daily/energy/vitamin-b12-deficiency-symptoms-much-more-than-fatigue/

I found this article helpful as well. https://universityhealthnews.com/daily/e...

Alfabeta

•5 years ago

8 Replies

B12 and pregnancy

My b12 levels have increased to 2000 after one year of frequent jabs... Can I hav a safe pregnancy?? Google says higher the level of mothers b12 higher the...

My b12 levels have increased to 2000 after one year of frequent jabs... Can I ha...

Gunj_redjem

•5 years ago

6 Replies

Why do you inject twice a week?

For those of you who inject B12 several times a week, why is this exactly?

deepocean

•5 years ago

28 Replies

Availability in other countries

I’m just wondering if recognition of the need for B12 injections is better in other countries such as Spain or Germany, given that the injections are more...

I’m just wondering if recognition of the need for B12 injections is better in ot...

Lurcher-lady

•5 years ago

2 Replies

Diagnosis of B12d or PA ?

How is a diagnosis achieved does it have to include Intrinsic factor antibodies test to be positive?

How is a diagnosis achieved does it have to include Intrinsic factor antibodies ...

Damseltree

•5 years ago

3 Replies

too much b12..?

I have heard that the consultant I see has just said that a new finding is that patients can have too much B12 so is cutting down on frequency of injections....

I have heard that the consultant I see has just said that a new finding is that ...

jillc39

•5 years ago

20 Replies

Pernicious anemia

I had diagnosed b12 deficiency in 2018 I was almost on bed with lot of brain damage... I’m still on weekly injections and still recovering,I’m 32 yrs old and...

I had diagnosed b12 deficiency in 2018 I was almost on bed with lot of brain dam...

Gunj_redjem

•5 years ago

6 Replies

Update, letters from consultants

Well I got the letters I requested from the GP surgery.....from the gastro and neuro consultant but not the print out of the original blood tests just a few...

Well I got the letters I requested from the GP surgery.....from the gastro and n...

lesbud1

•5 years ago

5 Replies

Hummmmm

I’ve been injecting b12 now for 6 months. After my initial load I am now on a once a month maintenance program. I have PA. My initial symptoms were mainly a...

I’ve been injecting b12 now for 6 months. After my initial load I am now on a on...

Freezeframe

•5 years ago

7 Replies

MMA blood test

MMA test Hello Can anyone tell me if taking vb12 supplements will affect the result of an MMA blood test? My active b12 assay was 35.1 but I’ve been using a...

MMA test Hello Can anyone tell me if taking vb12 supplements will affect the re...

Allie72

•5 years ago

7 Replies

Should I increase frequency of b12 jabs?

Its been nearly a year now since I started injecting every other day with b12. My many symptoms have abated and I am much improved. However I still have a...

Its been nearly a year now since I started injecting every other day with b12. M...

waveylines

•5 years ago

17 Replies

B12 injection

Hi All Question: Is there an obvious reason why one might get a surge in ones signature symptoms after ones has had an injection? I was diagnosed b12 deficient...

Hi All Question: Is there an obvious reason why one might get a surge in ones si...

Alfabeta

•5 years ago

7 Replies

Advice on B12 levels and symptoms

Hi, I’ve been kind of keeping an eye on this forum from over on the thyroid one! I’ve been struggling now with thyroid symptoms for a couple of years but as my...

Hi, I’ve been kind of keeping an eye on this forum from over on the thyroid one!...

Murphysmum

•5 years ago

9 Replies

B12 Deficiency and B1 thiamine deficiency?

I have sub acute degeneration of the spine due to B12. I have demyelination of the myelin sheath and in brain area too. I have been taking B12 injections every...

I have sub acute degeneration of the spine due to B12. I have demyelination of t...

montague53

•5 years ago

12 Replies

Medical Id

I was just curious if anyone wears a medical ID for their PA? I happened to come across and article a while back that suggests it due to it being a blood...

I was just curious if anyone wears a medical ID for their PA? I happened to com...

Nanc72

•5 years ago

17 Replies

PA and Epilepsy and intrinsic factor

I have had Epilepsy for over 40 years, I was pretty much controlled, then I started falling over indoors, ok I'm used to that, but this was no fit, I thought...

I have had Epilepsy for over 40 years, I was pretty much controlled, then I star...

music501

•5 years ago

2 Replies

So sorry its me again.

In my previous posts I told you my background. To refresh if I may. In early June 2014 my b12 was 108 (180~1130) I just found another result from mid Jan...

In my previous posts I told you my background. To refresh if I may. In early J...

buster_uk

•5 years ago

6 Replies

Can't SI or take sublinguals - started weird sensitive it's / allergic reactions.

Hi - does anyone know if the B12 for intravenous applications contains preservatives and additives? I am currently experiencing an increase in B12 / anaemia...

Hi - does anyone know if the B12 for intravenous applications contains preservat...

Slosh

•5 years ago

9 Replies

Intravenous b12 drip

I currently take a b12 injection hydroxocobalamin every other day and was wondering if an intravenous drip would be beneficial and improve my rate of recovery.

I currently take a b12 injection hydroxocobalamin every other day and was wonder...

toph

•5 years ago

6 Replies

Right side of body tingling?

Hi all, I wondered if I could ask advice. I’ve been having three monthly injections for 9 years. Usually if I’m a couple days out my hands and feet start to...

Hi all, I wondered if I could ask advice. I’ve been having three monthly injecti...

katied2490

•5 years ago

4 Replies

Reaching out to Indians in the forum?

Hi everyone, I was looking to reach out to any Indians using the forum seeing as our healthcare system Is unique in certain ways vis-a-vis procurement of b12...

Hi everyone, I was looking to reach out to any Indians using the forum seeing as...

KurupPrateek

•5 years ago

29 Replies

Would high dose of oral b12 cause other problems?

If you had to take 1000ug oral b12 daily to be able to absorb 2-4ug daily what would the 998ug do. presumably faecally removed but would that upset your...

If you had to take 1000ug oral b12 daily to be able to absorb 2-4ug daily what w...

lesbud1

•5 years ago

6 Replies

BMJ Oral Vitamin B12 can change our Practice

Is this article why some of us are being put on oral b12? what do we say to this? This is what is says This study confirms that oral 1000 μg cyanocobalamin...

Is this article why some of us are being put on oral b12? what do we say to thi...

lesbud1

•5 years ago

6 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for July 2019

Head tightness and pressure

Aching/painful joints - could this be b12 deficiency

Neuro examinations

B12 and iron deficiency link?

NO/ONOO Cycle and Benefits of Hydroxocobalamin

Why am I so tired?

PAS Conference 2019

Re post on auditory hallucinations

B12 and pregnancy

Why do you inject twice a week?

Availability in other countries

Diagnosis of B12d or PA ?

too much b12..?

Pernicious anemia

Update, letters from consultants

Hummmmm

MMA blood test

Should I increase frequency of b12 jabs?

B12 injection

Advice on B12 levels and symptoms

B12 Deficiency and B1 thiamine deficiency?

Medical Id

PA and Epilepsy and intrinsic factor

So sorry its me again.

Can't SI or take sublinguals - started weird sensitive it's / allergic reactions.

Intravenous b12 drip

Right side of body tingling?

Reaching out to Indians in the forum?

Would high dose of oral b12 cause other problems?

BMJ Oral Vitamin B12 can change our Practice

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive