Medical Id: I was just curious if... - Pernicious Anaemi...

Pernicious Anaemia Society

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Medical Id

Nanc72 profile image
17 Replies

I was just curious if anyone wears a medical ID for their PA? I happened to come across and article a while back that suggests it due to it being a blood disorder.

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Nanc72 profile image
Nanc72
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17 Replies
music501 profile image
music501

That's a good point, I'm in the UK and I think If I was taken to hospital, they would be able to access my medical files, perhaps If I was abroad then a med/bracelet would be wise, also I would because of my epilepsy

music501 profile image
music501

I will ask the nurse when go for my next B12 jab, she is more helpful than the receptionists

Nanc72 profile image
Nanc72 in reply to music501

I am in the US and just ordered one online! I’d rather be safe then sorry. Although not many Dr’s here know anything about it! Quite irritating actually.

EllieMayNot profile image
EllieMayNot in reply to Nanc72

May I ask where you found them? I'm in the US, as well, and agree about the overwhelming lack of knowledge by the medical professionals here. Very frustrating!

Nanc72 profile image
Nanc72 in reply to EllieMayNot

It’s called Lauren’s Hope. They are more like jewelry. I can’t get over the lack of knowledge, it’s actually quite scary. I don’t know half of what I need to, but it certainly seems more then what some of my Dr.’s know!

Gambit62 profile image
Gambit62Administrator

the most obvious reason for a medical ID would be to ensure that nitrous oxide isn't used as an anaesthetic should anything happen.

Whimzee26 profile image
Whimzee26 in reply to Gambit62

Why? Never read anything about nitrous oxide being contraindicated with PA.

Nanc72 profile image
Nanc72 in reply to Whimzee26

Oh yes, it drastically lowers b-12 levels. It’s a big no no!

Gambit62 profile image
Gambit62Administrator in reply to Nanc72

it doesn't actually lower levels it just oxidises the B12 to a form where your body can't use it

Ryaan profile image
Ryaan in reply to Whimzee26

Yes I’ve read it deactivates all the B12 in your body so your body is unable to use it.

My mother broke her ankle and they gave her plenty of Nitrous oxide and she was like ooooooooh......aaaahhhhh.... oooooh......I am floating. But after her op for her ankle she felt very weak and doctors didn’t consider she’s on B12 injections, took 2-3 months to regain her strength from a very nutritious diet high in meat, poultry, fish, fruit, veg nuts etc

All she really needed was probably the 6 loading doses to help regain her strength so Nitrous Oxide is a big no no even if it makes you feel ooooooooooh.

Whimzee26 profile image
Whimzee26

Thank you. Just a month post dx of PA, lots to learn and USA doctors are clueless

Nanc72 profile image
Nanc72 in reply to Whimzee26

I am in the US and trust me, I know! It’s been a long process for me and I still don’t feel well. I did for a short period of time, but now I am off again.

Ryaan profile image
Ryaan in reply to Nanc72

I hope you got your Folate, Ferritin and Vitamin D levels checked as as Folate and Ferritin work together with B12 and Vitamin D helps with fatigue and few other similar symptoms to low B12.

Use Raw organic honey, Figs, Dates and Black seed oil in your diet daily. They are best of nutrition, you can google each one and they help a lot with any form of Anemia and are very good for fatigue also.

esteloca profile image
esteloca

I've been looking into Lauren's Hope too! And good lord I didn't know about nitrous oxide! Thanks for the heads up.

Nanc72 profile image
Nanc72 in reply to esteloca

I just added “no nitrous oxide” to it. I didn’t list it as an allergy

esteloca profile image
esteloca in reply to Nanc72

Ok thanks!

terrybraden profile image
terrybraden

Hi Nanc72,

I would say that it’s a very good idea to wear medical ID. I do myself.

Terry

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