Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for July 2019

I have got a print out of my new blood tests Can you help me work out if I should ask for further tests for Pa etc?

I have had fatigue the last few years but the last few months it’s been even worse. These are my results from a test a few weeks ago. My b12 has gone up from...

I have had fatigue the last few years but the last few months it’s been even wor...

Rachel000

•5 years ago

2 Replies

Is it possible to have pernicious anaemia despite B12 in the normal range?

Hi everyone. I have been ill since March this year and am at my wits end. Please can someone out there tell me if this timeline and symptoms resonate with...

Hi everyone. I have been ill since March this year and am at my wits end. Please...

nevermindme

•5 years ago

25 Replies

Daily headaches after b12 deficiency

Hi everyone. 3 months ago I suddenly started getting daily headaches . Not the extreme kind, but a tension headache. I was found to be b12 deficienct. I also...

Hi everyone. 3 months ago I suddenly started getting daily headaches . Not the e...

KurupPrateek

•5 years ago

10 Replies

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Balance problems and fluctuating high blood pressure

Hi everyone, I have autoimmune hypothyroidism and pa. I have for several months been experiencing severe balance problems when walking, mostly in the...

Hi everyone, I have autoimmune hypothyroidism and pa. I have for several months...

Mannequin18

•5 years ago

13 Replies

I thought it was to good to be true!

Hi All I have just had two periods with the majority of my symptoms absent. My recurring symptoms (after a whole range of symptoms ceased over two years ago) -...

Hi All I have just had two periods with the majority of my symptoms absent. My r...

Alfabeta

•5 years ago

7 Replies

Redness in stomach

After an episode of sickness after eating I was sent for the camera down They just found a lot of redness Blood tests came back very low in iron My doctor...

After an episode of sickness after eating I was sent for the camera down They j...

lilly60

•5 years ago

8 Replies

Aching bones

Hi I’ve been on b12 injections every 3 months for the past 2 years. I recently had my injection Tuesday. However all week and still now the bones in my legs...

Hi I’ve been on b12 injections every 3 months for the past 2 years. I recently h...

Elleeee

•5 years ago

14 Replies

Local NHS policies on B12 def

Can anyone guide me on how to find my local policy on b12 deficiency? Can I find it online?

Can anyone guide me on how to find my local policy on b12 deficiency? Can I find...

lesbud1

•5 years ago

4 Replies

Trial of b12 injections due but how long is reasonable?

I have all the symptoms including neurological which indicate b12d but non of the tests are in the range. A trial of injections is proposed. How long should a...

I have all the symptoms including neurological which indicate b12d but non of th...

Damseltree

•5 years ago

5 Replies

The NHS is a monopoly.

considering the nhs took ages to diagnose me and ignored many of my horrendous symptoms, and probably labelled me as an attentions seeker. You would think...

considering the nhs took ages to diagnose me and ignored many of my horrendous ...

lesbud1

•5 years ago

14 Replies

Silent Heart Attack

For those who suffer nerve damage Inc periferal, automatic, etc. I was told today that if you have this type of damage then and I do not mean to cause panic...

For those who suffer nerve damage Inc periferal, automatic, etc. I was told tod...

buster_uk

•5 years ago

16 Replies

Ignorant GPs

My 6 year old granddaughter who suffered from bad asthma, and horrendous nose bleeds... poor wee soul has missed a lot of school due to these illnesses.....

My 6 year old granddaughter who suffered from bad asthma, and horrendous nose bl...

Margomck32

•5 years ago

6 Replies

Getting symptoms but not technically deficient in B12

Getting symptoms (palpitations, shortness of breath) of B12 deficiency but I am not technically deficient. My B12 is 271 and folate was 4.6 before I began on...

Getting symptoms (palpitations, shortness of breath) of B12 deficiency but I am ...

Hinch199

•5 years ago

13 Replies

b12 in fridge

Sorry two more questions please Do you need to keep the vials in the fridge? I thought they were okay out just needed to keep out of light? If your surgery...

Sorry two more questions please Do you need to keep the vials in the fridge? I ...

lesbud1

•5 years ago

8 Replies

Looking for advice onB12, folate, ferritin and heamoglobin levels? Are my levels below deficient?

I just joined this forum on HU to try and find the levels for the below tests to find out when my gp should treat with B12 injections and if I have a...

I just joined this forum on HU to try and find the levels for the below tests to...

Rachel000

•5 years ago

8 Replies

Am I dying?

Hi everyone, I developed Pernicious anaemia about a year ago, after having an severe episode of pancreatitis and subsequent surgery. I tried to continue to...

Hi everyone, I developed Pernicious anaemia about a year ago, after having an se...

dch252

•5 years ago

18 Replies

Hot flushes, are they b12 related?

Does anyone else have trouble with hot flushes? I have been putting it down to menopause but I seem to be going hot, cold most of the day.

Does anyone else have trouble with hot flushes? I have been putting it down to m...

lesbud1

•5 years ago

7 Replies

Self injection instruction

Hi has anyone got a good link for a video instruction for self injecting B12? Preferably sub cut I’ve looked at a few on YouTube and they aren’t particularly...

Hi has anyone got a good link for a video instruction for self injecting B12? Pr...

Countrylou

•5 years ago

6 Replies

Glass Particles from Ampoules

What level of concern should I have when using B12 from single dose, glass ampoules for SI? I inject subcutaneously (28g needle) and am wondering if I am...

What level of concern should I have when using B12 from single dose, glass ampou...

EllieMayNot

•5 years ago

7 Replies

Question regarding Injections.

Hello Everyone, I am having heart palpitations and loose stools for the last few months. Had 3 ECGS and couple blood test but everything is fine. Requested...

Hello Everyone, I am having heart palpitations and loose stools for the last fe...

ShaneWarne

•5 years ago

3 Replies

Advice please for H Pyloribefore gastro app

Hello, not posted much recently, but read daily. Could I ask for advice please on H Pylori. I had been experiencing a lot of pain under right rib and stomach...

Hello, not posted much recently, but read daily. Could I ask for advice please ...

potter5

•5 years ago

8 Replies

IFA or not IFA?

IFA or not IFA? Distressed yesterday to hear my practice nurse suggest that, as my IFA is negative and my B12 now high (after 8 months of injections what else...

IFA or not IFA? Distressed yesterday to hear my practice nurse suggest that, as...

Dragonwalker

•5 years ago

9 Replies

Should I take a particular vitamin supplements

I've been diagnosed with p.a. for about 2 years now. I'm 49 and have gone through the menopause. My question is， should I be taking any particular vitamin...

I've been diagnosed with p.a. for about 2 years now. I'm 49 and have gone throug...

Sherlockthepup

•5 years ago

8 Replies

New to the forum. Can you overdose on B12?

Hi everyone. Just to introduce myself. I am from Bulgaria, 31 years old. Had a reading of 117 of B12 but no anemia. Doc started me on Hydroxocobalamin...

Hi everyone. Just to introduce myself. I am from Bulgaria, 31 years old. Had a...

bulgariansmurf

•5 years ago

3 Replies

Is PA reversible?

I've been diagnosed with PA around 4 years ago. I've had aninjection every three months until January 2018 - since then my B12 levels have been good -...

I've been diagnosed with PA around 4 years ago. I've had aninjection every three...

Pigivi

•5 years ago

19 Replies

White patches in finger nails

Hi everyone I have Pa with gastritis My finger nails often have white patches and sometimes turn a blue colour I have intramuscular B12 injection every 2...

Hi everyone I have Pa with gastritis My finger nails often have white patches ...

Bmwx

•5 years ago

3 Replies

dogs get weekly injections of b12?

I have just read an article on the guardian website that stated that dogs with b12 deficiency get weekly injections. How come the human medical profession...

I have just read an article on the guardian website that stated that dogs with b...

lesbud1

•5 years ago

10 Replies

Anyone else suffer from anxiety after loading doses?

I have done my loading doses and am on my second every other day injection so 8 in total. Today its taken me ages to wake up and I have the most horrible...

I have done my loading doses and am on my second every other day injection so 8 ...

buster_uk

•5 years ago

14 Replies

New to P A S.

I have been chasing symptoms for several years. Mostly weakness, fatigue, brain fog, dizziness and vision changes. After having many, many, bloods ordered by...

I have been chasing symptoms for several years. Mostly weakness, fatigue, brain ...

reelingenious

•5 years ago

4 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for July 2019

I have got a print out of my new blood tests Can you help me work out if I should ask for further tests for Pa etc?

Is it possible to have pernicious anaemia despite B12 in the normal range?

Daily headaches after b12 deficiency

Balance problems and fluctuating high blood pressure

I thought it was to good to be true!

Redness in stomach

Aching bones

Local NHS policies on B12 def

Trial of b12 injections due but how long is reasonable?

The NHS is a monopoly.

Silent Heart Attack

Ignorant GPs

Getting symptoms but not technically deficient in B12

b12 in fridge

Looking for advice onB12, folate, ferritin and heamoglobin levels? Are my levels below deficient?

Am I dying?

Hot flushes, are they b12 related?

Self injection instruction

Glass Particles from Ampoules

Question regarding Injections.

Advice please for H Pyloribefore gastro app

IFA or not IFA?

Should I take a particular vitamin supplements

New to the forum. Can you overdose on B12?

Is PA reversible?

White patches in finger nails

dogs get weekly injections of b12?

Anyone else suffer from anxiety after loading doses?

New to P A S.

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Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

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