Re post on auditory hallucinations

[Alfabeta]

I found this article helpful as well.

universityhealthnews.com/da...

[EllieMayNot]

This is an excellent article! I am forwarding it to friends and family. Thanks for sharing!

[Alfabeta in reply to EllieMayNot]

You’re welcome.

[ktwing]

It's a good article, but unfortunate that it states 'a simple blood test can reveal your actual B12 levels', without pointing out that the serum B12 which most doctors will rely on, won't reveal your actual levels!

[Alfabeta in reply to ktwing]

Very true, I wish people, when writing such articles would spoil all by extending their brief into areas that they are not expert in. I identified another article which made a similar error.

However, I hoped to shed some light on my main symptom which, if stated to a neurologist, might end in one being taken down the mentally ill route.

I had a discussion with a neurologist who tried to take me down this route and the only voices I was hearing was shall I head butt this moron who doesn’t listen, knows nothing about b12 and is to arrogant to learn!

Damage to the myelin sheath causes so many symptoms that can be construed, medically, as being caused by a large number of medical conditions and I read almost daily on this site of people who have b12 deficiency undiagnosed - for years sometimes - because they’ve been taken down medical cul-de-sacs.

Thanks for your response.

[ktwing in reply to Alfabeta]

Absolutely, and I'm sorry, I wasn't trying to dismiss your hopes at all - it's just frustrating that so many useful articles include misinformation, as I'm sure you're all too aware.

I had visual hallucinations and it was really quite frightening on top of other weird symptoms that made the GP just look at me like I was unhinged when I described them. My neurology consultant kind of humours me, but doesn't understand about B12 at all and really just wants me to take Disease Modifying Drugs for MS, so I do understand a little bit of what you're going through. I do hope you find some relief. xx

[Alfabeta in reply to ktwing]

Thanks, I agreed totally with the point you made.

[Cherylclaire Forum Support]

Thanks for that.

Always love a list - especially helpful when the symptoms are described as "common":

The list of symptoms known to many GPs and even consultants from their training days must be a very paltry one.

I'm guessing most observant GPs soon add to their own list by noticing their deficient patients' most visible symptoms... but might not be so quick with the antidepressants if they realised that "depression" could be another symptom - and therefore another sound indicator of deficiency status.

For me, a low mood is just one component of "mood-swings" -which I note is not on this list- and one end of a scale. None of the moods I experience have a particular source beyond B12 deficiency, and none last very long. So it was quite easy for me to say no to Amitriptyline, no matter how many times it got offered to me. It isn't always this cut and dried a distinction for everyone here. Sometimes treatment is accepted to stop it being offered over and over, or even as a means of elimination. Would it be surprising if some of us didn't get depressed ?

I also noted the mention of a possibility of switching to oral B12 supplementing , once levels have returned to normal. Luckily, mine are now highly abnormal: > 2000ng/L : hahaha !

Still waiting for my symptom-free day. So sure it's on it's way.

[Alfabeta]

Symptom free day! I doubt it. I comfort myself by the fact that I do not, as yet, have the symptoms of PA. I get symptoms that disturb me about one week in the cycle between injections plus some minor things like small fibre neuropathy but the PA bloggers in here really have my sympathy and the administrators are simply saints.

Thank you for your response.