So sorry its me again.

[buster_uk]

In my previous posts I told you my background. To refresh if I may.

In early June 2014 my b12 was 108 (180~1130)

I just found another result from mid Jan 2015 from same Dr's. 116 (115~1000) the trust changed the ranges at the beginning of 2015.

My b12 had increased 8pts in six months. This was while I still had a family and decent home. I was eating at the time almost every main meals either liver or chicken of beef with lots of large green veg and salad. As well as juicing kayle and spinich with bananas and lime juice. As well as yoghurts and milk.

As my b12 only increased 8pts in six months do you think the chances of malabsorbsion are high?

Thank you for reading.

[pvanderaa]

So you started self injecting on 16 June 2019. You’ve diagnosed yourself. It is a courageous step and the first day of the rest of your life.

Yes, although I’m not medically trained, rereading your previous post, it all looks like a B12D. You may never know why you developed an absorption issue. Aging, stress, who knows?

Now going forward, Are you taking folic acid and a daily multivitamin and are you keeping a logbook to monitor your self by your symptoms? You want to try to halt further neurological damage and start repair of any existing nerve damage.

Have you also looked at gluten and/or dairy intolerance?

Any diabetes?

I’m 61 now and was about your age when I was diagnosed with a geographic tongue.

[buster_uk in reply to pvanderaa]

Yes I am taking folic acid as well as other Co factors. I was diagnosed back in late 2011 type 2 diabetic an put on metformin, statins, water pills, ppi and BP meds. All now stopped apart from BP meds. I stopped taking them about 20months ago. I was told no longer diabetic. I have just got my b12 readouts from the last three test.

108,116,126 (180~1130) and then >1600 because of loading doses I did myself. The 126 was a year after the previous test. But don't know how it went up 10pts from previous year as my diet only contained rubbish. Chocolate, sweets, bread, pasta.

Logbook yes a digital one.

No dairy intolerance

[Vicky2822]

Was your ferritin and vit d levels ok?

I think lots of people never find the real reason for their deficiencies. My daughter has had the intrinsic factor, coeliac, diabetes, h.pylori tests and all came back negative.

I think in most cases anyway, if you do find the reason for the deficiencies the answer is still the same - b12 injections for life. I know someone whose b12d was caused by h.pylori that’s been treated but she still has to have the injections.

[buster_uk in reply to Vicky2822]

Hi viky. My ferritin was 20 something just above the lower range. My vit D was 14.2 very low.

I am supplementing vit D now.

I think I've had this for over 15 or so years undetected.

[Vicky2822 in reply to buster_uk]

Your ferritin is still really low for a man it should be 100-120. In range doesn’t mean well. This will be giving you symptoms too. I take 2 x ferrous sulphate 200mg tablets a day with vit c (mine was 4 but feel like it’s working as my obsession with ice and bell peppers has wained and I’m not as breathless. In range doesn’t mean well - look up optimal ferritin and iron levels for a man.

[buster_uk in reply to Vicky2822]

Thank you viky. I know I'm low in iron. And I believe that the b12 supplements will Rob my iron stores even more as it works with the folic acid to make blood cells. So more iron supplements are needed. It's a double wammy. Struggling to keep my eyes open during the day but not been able to sleep on a night.