Hummmmm

[Freezeframe]

I’ve been injecting b12 now for 6 months. After my initial load I am now on a once a month maintenance program. I have PA. My initial symptoms were mainly a sore tongue. As soon as I started b12 injections I suddenly got pins and needles everywhere, I was nauseated, had an increase heart rate, blurred vision, eye flashes, weakness, and many more crazy symptoms that were not there prior to therapy. I wondered is it side effects from the b12 injections or healing? So I had my sister checked out for pernicious anemia/ low b12. She is good. So we decided to give her an injection. They sell injections down the street at a B bar for “ energy” so she decided to take one of my injections. Guess what ? She now has pins and needles, blurred vision , nausea ... So some of my symptoms are probably side effects.

Thoughts?

[Nackapan]

I've always thought old symptoms revisited after a b12 injection was part of the healing process. The only thing I get after an injection is a particular kind of headache for up to a day . B12 injections are the only thing that has helped me so far. 9 months in.

What injections are being sold down the street?

Do you not get them prescribed for your PA?

So are you saying you are worse all the time?

What were your symptoms before treatment?

[Freezeframe in reply to Nackapan]

Thank you for your response. There are lots of so called b bars here in California. They advertise that it’s given for overall wellness. No prescription needed..My doctor prescribed my Methylcobalamin. My only symptoms that I had prior to diagnosis was a sore tongue and brain fog . I got most of my symptoms AFTER I started therapy. I no longer am experiencing most of them so I either am getting used to the b12 and side effects or that I am healing. Could be a little of both I suppose.

[Nackapan in reply to Freezeframe]

I expect it is. I keep a diary. Patterns do occur. I'm getting to move forwards sideways backwards but it's like 3 steps forward 2 back. So very slow but in the right direction. Nerve damage can

improve but it takes a long time . One doctor told me hoe many mm a week for nerve growth but I can't remember now. The main thing is you are healing. Good.

When your central nervous system gets in a muddle with brain messages getting confused my hope is eventually it will recalibrate. The last neurologist said some messages given like you can't move ignore as you can and the brain hopefully will then ignore the wrong one. Such a weird feeling but can get tricky if correct ones are happening too!!

Sounds like your injections have woken some things up like in Clivealives description of a radio being tuned and nerves waking up heloed me. Sounds like you have nipped most of your symptoms' in the bud" so your regime of maintainence should keep your symptoms at bay.

If treatment is delayed the more damage is done and the longer it takes fo any improvement.

Thank goodness for that clever women in the 3o's amongst other scientists starting b12 injections as a treatment

I wish you well

[Nackapan in reply to Nackapan]

Minot and Murphy and Dorothy Hodgson are among the scientists we are all very grateful to. I know raw liver was first used to treat but unsure what doctor. The history must be on here somewhere . I think only in the last 100 yrs people have had treatment if kinds .

[pvanderaa]

The only way to really sort out these contraindications is to keep a logbook. Restart with day zero each jab. If they are from the repair, you will see a pattern of one symptom following another over 3 or 4 days.

Repair of neurological damage can give some very counterintuitive symptoms. Increased pain, nausea, or hunger, aggression, headaches have all been described as a bad reaction to B12 injections but can be illusions from the nerve repair. Mind you, they seem real enough, but it takes about 3 days for the brain to recalibrate to the stronger signals coming in from nerve repair and stronger myelin sheath.

Comparing day to day doesn’t work because you may feel you are on a roller coaster ride of highs and lows. After a couple of cycles of injections, compare day 1 to day 1 in a previous cycle. You can monitor progress by measuring severity and comparing to severity of the same symptom in a previous cycle.

Nerve repair is very slow ( months and years) and any set back can seem like you are back at square one. Stick with a regime that appears to be moving you in the right direction.

Your sister may also have neurological damage so may not be a true control subject for your experiment. You may share a common genetic predisposition of some sort. What does “She is good.” mean?

I’ve found that the severity of these counterintuitive symptoms after a jab is proportional to how deficient I was before the jab.

Nausea comes from either ear nerves or the vagus nerve to the stomach.

[Freezeframe in reply to pvanderaa]

What you say makes a lot of sense. I keep a detailed journal and have been reviewing those days .

Thank you

[fbirder]

Are you in America? Were the injections methylcobalamin?

Some people experience an adverse reaction to methylcobalamin. Try swapping to cyanocobalamin.