Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for July 2019

B12 level of 800 but still i have symptoms?

Hi, i'm 20 years old and was diagnosed with a b12 deficiency, a few months ago. My b12 level at that time was 140. I took methylcobalamin for 5 months. For 3...

Hi, i'm 20 years old and was diagnosed with a b12 deficiency, a few months ago. ...

JhonnyBoy

•5 years ago

14 Replies

GP Stopped my 3 monthly B12 Injections

New to this site. Diagnosed B12 and Folate deficient Jan 2018 after complaining of a number of problems/ symptoms to my Doctor (I also have Reflux and Atrial...

New to this site. Diagnosed B12 and Folate deficient Jan 2018 after complaining ...

guitarman49

•5 years ago

14 Replies

Blood results

So today I have picked up my blood results and handed in my letter requesting my B12 injections to be continued. I was told when I rang that my results were...

So today I have picked up my blood results and handed in my letter requesting my...

lesbud1

•5 years ago

6 Replies

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confused

For the past year I've been trying to find a diagnosis for my extreme fatigue. Can I please ask the community for some advice? My Active Vitamin B12 result...

For the past year I've been trying to find a diagnosis for my extreme fatigue. ...

Hidden

•5 years ago

8 Replies

State of the art testing for PA?

I've been pursuing PA as a possible explanation for my numerous long term health issues, beginning injections on 6/3. As many here report, results have been...

I've been pursuing PA as a possible explanation for my numerous long term health...

SouthSounder

•5 years ago

7 Replies

How long to absorb 1.0 ml IM injection?

Subcut injections give me little benefit, so I inject 1.0 ml I.M. into my thigh. How long does it take for that fluid to be absorbed by the leg muscle? I ask...

Subcut injections give me little benefit, so I inject 1.0 ml I.M. into my thigh....

Tiredo

•5 years ago

3 Replies

Need Help with results

Hello Everyone, I am having heart palpitation and fast heart rate from quite sometime and loose stools. Done several tests (Full blood count,liver function...

Hello Everyone, I am having heart palpitation and fast heart rate from quite so...

ShaneWarne

•5 years ago

7 Replies

Does Pernicious Anemia cause autoimmune markers in blood tests?

Hi everyone! I wasn't sure how to word the question so I hope it makes some sense! But as mentioned in previous posts I have been seeing a hematologist for a...

Hi everyone! I wasn't sure how to word the question so I hope it makes some sens...

liaratsoni

•5 years ago

3 Replies

Sore split mouth: B12 deficiency Symptom return 2 days after injection

Further to previous reply to post regarding return of symptoms. Taken a couple of days after NHS injection at GPs. This is quite usual for me, so GP has...

Further to previous reply to post regarding return of symptoms. Taken a couple ...

Cherylclaire

Forum Support•5 years ago

5 Replies

Run down a lot. Cocktails anyone?

Hey folks. So, I’ve been getting bugs, infections and all sorts almost constantly for months now. I SI B12 monthly at the moment. I also take 400units folic...

Hey folks. So, I’ve been getting bugs, infections and all sorts almost constantl...

Benji76

•5 years ago

2 Replies

Headaches getting worse after b12 shots?

Hey everyone, I’ve been SI with hydroxocobal every alternate day and my headaches seem to be worse the day after the shot. I have burning sensations in my...

Hey everyone, I’ve been SI with hydroxocobal every alternate day and my headache...

KurupPrateek

•5 years ago

4 Replies

Anyone injecting 2x/day?

Hello, Just started B12 injection therapy roughly a month ago. Convinced my GP that, due to my neurological symptoms, that I needed to treat every other day...

Hello, Just started B12 injection therapy roughly a month ago. Convinced my GP t...

EllieMayNot

•5 years ago

32 Replies

B12 frequency & levels

I am curious to know those of you who take weekly or daily injections of B12 and have been for a longer period of time (6 months plus), what are your average...

I am curious to know those of you who take weekly or daily injections of B12 and...

HBerry

•5 years ago

16 Replies

Fatigue

My fatigue seems to be getting worse? I had an extra b12 injection one week gap to see if it would help. My symptoms have changed a bit. Every time I try and...

My fatigue seems to be getting worse? I had an extra b12 injection one week gap...

Nackapan

•5 years ago

22 Replies

Links

Can anyone tell me why I can’t get any of the links to work? Could it be an iPad issue? It’s rather an old iPad :(

Can anyone tell me why I can’t get any of the links to work? Could it be an iPad...

Lurcher-lady

•5 years ago

9 Replies

Blog post on Unnecessary Retesting of B12 levels

Hi All, I missed this other new post when I started a thread yesterday. It's about doctors retesting B12 levels when guidelines suggest retesting is not...

Hi All, I missed this other new post when I started a thread yesterday. It's abo...

Sleepybunny

•5 years ago

4 Replies

New post on B12 Deficiency Info blog

Hi All, Interesting new blog post on B12 Deficiency Info website. https://www.b12deficiency.info/blog/ The person who runs the website discusses her mother's...

Hi All, Interesting new blog post on B12 Deficiency Info website. https://www.b1...

Sleepybunny

•5 years ago

6 Replies

B12 deficiency symptoms with good levels

Hello, I am a 42 year old male that is at heavier end of healthy weight/height ratio. I had increasingly frequent pins and needles in both hands last year when...

Hello, I am a 42 year old male that is at heavier end of healthy weight/height r...

Luac

•5 years ago

17 Replies

Supplementary versus food source folate

As a forum with considerable understanding and experience of folate and folic acid issues, I am wondering if anyone would care to comment? The form of folate...

As a forum with considerable understanding and experience of folate and folic ac...

helvella

•5 years ago

5 Replies

Orange needles

Looking at the Medisave site, it seems all orange needles are 1” is this ok for the thigh muscle. I’m not obese, but not skinny either, will this be ok for me?...

Looking at the Medisave site, it seems all orange needles are 1” is this ok for ...

Lurcher-lady

•5 years ago

19 Replies

Asking for a friend

Hi has anybody ever taken 5000mg once a week of invicta coelecaleforal bit d3 If so have you had any side affects. Many thanks. My sister in law is also...

Hi has anybody ever taken 5000mg once a week of invicta coelecaleforal bit d3 ...

Patjamber

•5 years ago

5 Replies

NHS website states

The NHS website states " PA is the most common cause of b12 deficiency in the UK". So why do NHS doctors not read that? It goes on to say "Some people can...

The NHS website states " PA is the most common cause of b12 deficiency in the UK...

lesbud1

•5 years ago

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Low B12

Hi was hoping for some help/advice. I've recently been diagnosed with hypothyroidism after months of gp/ hospital visits just started 50mcg of levothyroxine...

Hi was hoping for some help/advice. I've recently been diagnosed with hypothyroi...

Gmanfooty

•5 years ago

12 Replies

Filter needles

I’m hearing people say that a special filter needle is needed to draw up the fluid, to prevent minute glass particles getting into the body. Is this correct?

I’m hearing people say that a special filter needle is needed to draw up the flu...

Lurcher-lady

•5 years ago

25 Replies

Wait between B12 diagnosis and loading doses?

Hello,I’m new here. I’ve just been diagnosed with a B12 deficiency (levels of 75) after some blood tests. I initially went to the GP complaining that I hadnt...

Hello,I’m new here. I’ve just been diagnosed with a B12 deficiency (levels of 75...

AmHW

•5 years ago

12 Replies

Enlarged red blood cells

If this is signicant on blood tests along with symptoms but normal level of b12 is the next stage not correct to be treated by b12 injections ? Another family...

If this is signicant on blood tests along with symptoms but normal level of b12 ...

Andypandy30

•5 years ago

4 Replies

Pernicious Anemia? Body deteriorating fast

Hi guys, my body feels like complete shit. Symptoms: When I come in contact with cold temperatures or sometimes randomly, I find body parts like face and...

Hi guys, my body feels like complete shit. Symptoms: When I come in contact with...

JabberWockyz

•5 years ago

43 Replies

Taking B12 injections to Canada

I am going to Canada for a holiday. I give myself B12 injections regularly, purchased from Germany but not with my GP's knowledge. Seem to need a doctor's...

I am going to Canada for a holiday. I give myself B12 injections regularly, purc...

226lowlane

•5 years ago

8 Replies

How much folate does one need

Does anyone know please. Once I start B12 injections how much folate will I need to take to keep it in balance. I don't have any faith that the Dr will know.

Does anyone know please. Once I start B12 injections how much folate will I nee...

Damseltree

•5 years ago

3 Replies

Tests for stomach cancer

Hi everyone, I have been feeling bloated for about a month. My doc is worried as I have had a non endocrine turnout in the past. I think a bit of my symptoms...

Hi everyone, I have been feeling bloated for about a month. My doc is worried a...

CarrieD2018

•5 years ago

2 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for July 2019

B12 level of 800 but still i have symptoms?

GP Stopped my 3 monthly B12 Injections

Blood results

confused

State of the art testing for PA?

How long to absorb 1.0 ml IM injection?

Need Help with results

Does Pernicious Anemia cause autoimmune markers in blood tests?

Sore split mouth: B12 deficiency Symptom return 2 days after injection

Run down a lot. Cocktails anyone?

Headaches getting worse after b12 shots?

Anyone injecting 2x/day?

B12 frequency & levels

Fatigue

Links

Blog post on Unnecessary Retesting of B12 levels

New post on B12 Deficiency Info blog

B12 deficiency symptoms with good levels

Supplementary versus food source folate

Orange needles

Asking for a friend

NHS website states

Low B12

Filter needles

Wait between B12 diagnosis and loading doses?

Enlarged red blood cells

Pernicious Anemia? Body deteriorating fast

Taking B12 injections to Canada

How much folate does one need

Tests for stomach cancer

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How Often do you feel you actually need your B12 injection?

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