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Pernicious Anaemia Society

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All posts for July 2019

Low Monocytes

I have had a CBC panel done twice in the past 6 months and my monocytes have come back at 1 on the past 2 blood tests. Has anyone else seen this? My b12...

I have had a CBC panel done twice in the past 6 months and my monocytes have com...

Corrieann

•5 years ago

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Purchasing B12 phials after Brexit

Good evening to all. I have a question relating to the purchase of hydroxycobalamin and brexit. After brexit, if and when it should ever happen, will it still...

Good evening to all. I have a question relating to the purchase of hydroxycobala...

roddogsbody

•5 years ago

10 Replies

Injection failure?

Can anyone tell me if an injection fail to hit the spot for B12, I had the injection and have them on a 3 monthly basis, this time it was stinging like mad, I...

Can anyone tell me if an injection fail to hit the spot for B12, I had the injec...

Cb1963

•5 years ago

6 Replies

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Non dietary B12 deficiency needs B12 jabs

Hi All, New blog post on B12 Deficiency Info website. Mentions that many with non dietary B12 deficiency are not given B12 injections....

Hi All, New blog post on B12 Deficiency Info website. Mentions that many with no...

Sleepybunny

•5 years ago

1 Reply

Throat pain and shortness of breath

I have agonising throat pain and neck pain .Does any one experienced the same with b12 deficiency .My b12 was 125 ng/ml and D3 is 6.8 mg/ml. I have already...

I have agonising throat pain and neck pain .Does any one experienced the same wi...

Santoshk7

•5 years ago

8 Replies

? Oxford Biosciences Methylcobalamin

Hello. Am wondering if any of those who use this brand have any feedback on the products? I know methylcobalamin is light sensitive, is it heat sensitive as...

Hello. Am wondering if any of those who use this brand have any feedback on the ...

EllieMayNot

•5 years ago

10 Replies

Been offered b12 I. M. trial of 2 weeks

See my previous posts, many neurological symptoms and most of the other symptoms too. But serum b12 in 300s and MMA and HoloTC in the normal range but I don't...

See my previous posts, many neurological symptoms and most of the other symptoms...

Damseltree

•5 years ago

6 Replies

Numbness and tingling back of head, neck and side of face

Hi all, I’m wondering if any of you have had this symptom? To go with all the other things I’m experiencing - this has just started 😬

Hi all, I’m wondering if any of you have had this symptom? To go with all the ot...

avock26

•5 years ago

3 Replies

Newly diagnosed

Hi, after finally going to doctor about long term numbness in the tips of my fingers, a blood test gave a B12 count of 89. First B12 injections next Mon and...

Hi, after finally going to doctor about long term numbness in the tips of my fin...

HK51

•5 years ago

3 Replies

lots of questions on blood tests

I am going to ask my GP if I can have MMA, Homocysteine and T3 T4 tests done as I had an overactive thyroid that was treated years ago and then was put on...

I am going to ask my GP if I can have MMA, Homocysteine and T3 T4 tests done as ...

lesbud1

•5 years ago

2 Replies

Confused! Do i have a real b12 deficiancy?

Hi all, Im new here and just looking for some advice please. Back last October I went for some bloods as I was feeling out of sorts and was pregnant at the...

Hi all, Im new here and just looking for some advice please. Back last October I...

Aly2

•5 years ago

25 Replies

Daughter still struggling Update.

Morning all. I think it was around 4 months ago when I posted about my daughter's blood test results when her Vit D was really low, but I was also concerned...

Morning all. I think it was around 4 months ago when I posted about my daughter'...

Ritchie1268

•5 years ago

16 Replies

Facial numbness and vision changes

Does anyone ever get facial numbness and vision issues? Recently diagnosed and taking injections. Just really weird sensations. I also noticed I have some...

Does anyone ever get facial numbness and vision issues? Recently diagnosed and t...

Coonass1

•5 years ago

7 Replies

Pain, pin and needles after b12 injection

Hello Everyone, Just had my second B12 injection yesterday on my right arm (had one last week on left arm) and since this morning afer waking up I have...

Hello Everyone, Just had my second B12 injection yesterday on my right arm (had...

ShaneWarne

•5 years ago

4 Replies

New symptom (hypersensitive ear) after Cyanocobalamine shot

Hi all, I'm new to B12-deficiency/Pernicious Anaemia, but have been having symptoms for many years. Lately, after moving to a tropical climate (Singapore),...

Hi all, I'm new to B12-deficiency/Pernicious Anaemia, but have been having sympt...

Heidiv

•5 years ago

25 Replies

Behaviour Optometrist

Went to one yesterday. Not on NHS now. Mainly used for rehab after brain injury. Dyslexia and learning g difficulties. I had an assessment. Trial and error...

Went to one yesterday. Not on NHS now. Mainly used for rehab after brain injury...

Nackapan

•5 years ago

8 Replies

Pls suggest

My neuro today told me to stop taking shots for one month so that the level of b12 in blood should come down...I’m so anxious my symptoms might get worse and...

My neuro today told me to stop taking shots for one month so that the level of b...

Gunj_redjem

•5 years ago

13 Replies

GP questioning why serum b12 above range if body gets rid of excess b12.

Went to gp yesterday with my daughter to have her 12 weekly jab. Her last blood test ( meant to be checking ferritin but did b12 even though she’d emailed...

Went to gp yesterday with my daughter to have her 12 weekly jab. Her last bloo...

Vicky2822

•5 years ago

10 Replies

How conclusive is endoscopy?

Hi again guys! I saw the gastro today who was as helpful as every other consultant I have seen telling me that a b12 level of 197 (normal range over 200)...

Hi again guys! I saw the gastro today who was as helpful as every other consult...

liaratsoni

•5 years ago

11 Replies

sublingual B12 pointless?

I am disappointed to read online that sublingual b12 can not work as the molecule is too large to be absorbed that way. I used to take sublingual but I suppose...

I am disappointed to read online that sublingual b12 can not work as the molecul...

lesbud1

•5 years ago

37 Replies

Enquiry

Why is Pernicious Anemia + Vitamin B12 so rife in the world? Was it as much in the 17/18 century? Is there written records on this awful condition? Very...

Why is Pernicious Anemia + Vitamin B12 so rife in the world? Was it as much in t...

a1ngel

•5 years ago

13 Replies

B12 active blood test

I know a serum blood test not needed once b13 injections have started. I was wondering if an active b12 test would be useful at some stage? If so how long do...

I know a serum blood test not needed once b13 injections have started. I was wo...

Nackapan

•5 years ago

2 Replies

High B12

I have had high B12 results for years now as I have generally supplemented. For. While I have not and am having symptoms of low B12 and so decided to do an...

I have had high B12 results for years now as I have generally supplemented. For....

Slosh

•5 years ago

2 Replies

Neurologist appointment

Hello, I've posted here before re. peripheral neuropathy (since May this year). I have autoimmune thyroiditis and atrophic gastritis. Back in 2010 I was...

Hello, I've posted here before re. peripheral neuropathy (since May this year)....

Hidden

•5 years ago

28 Replies

Visit to hematologist for pernicious anemia

Hello folks, It has been ten months since my PA diagnosis (positive IFA test). After loading doses and tracking symptoms I have increased my injection...

Hello folks, It has been ten months since my PA diagnosis (positive IFA test). ...

Greena51

•5 years ago

26 Replies

Perpetual exhaustion and fogginess continue to affect my entire life

For starters, I have NOT been diagnosed with pernicious anaemia or B12 deficiency. I have had my B12 serum levels tested on multiple occasions over the years,...

For starters, I have NOT been diagnosed with pernicious anaemia or B12 deficienc...

zheshi14

•5 years ago

13 Replies

Did an MRI Brain and Cervical spine for headaches.

So I did an MRI brain and a CSV for headaches. Normal. Did homoscysteine (while on shots every other day) and MMA. Homocysteine normal. (11.xx) MMA - negative...

So I did an MRI brain and a CSV for headaches. Normal. Did homoscysteine (while ...

KurupPrateek

•5 years ago

3 Replies

do i need to take more b 12 if my levels are 290[200-900]

do i need to take more b12 as my levels now are into normall also my vit d is 20 [20-200] i go in the sun a lot so it help me raise it

do i need to take more b12 as my levels now are into normall also my vit d ...

weazle74

•5 years ago

3 Replies

My next injection is due

How does everyone feel when there injection is due... I’ve only ever had the loading doses. My next one is 08/08/16. I’m sure I feel a bit forgetful, grumpy,...

How does everyone feel when there injection is due... I’ve only ever had the loa...

rr1993

•5 years ago

7 Replies

Will this deficiency ever resolve

It’s been 15months I’m on b12 shots better then earlier but will this ever resolve I feel so disabled lot of physiological changes always in bed...will I ever...

It’s been 15months I’m on b12 shots better then earlier but will this ever resol...

Gunj_redjem

•5 years ago

6 Replies

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for July 2019

Low Monocytes

Purchasing B12 phials after Brexit

Injection failure?

Non dietary B12 deficiency needs B12 jabs

Throat pain and shortness of breath

? Oxford Biosciences Methylcobalamin

Been offered b12 I. M. trial of 2 weeks

Numbness and tingling back of head, neck and side of face

Newly diagnosed

lots of questions on blood tests

Confused! Do i have a real b12 deficiancy?

Daughter still struggling Update.

Facial numbness and vision changes

Pain, pin and needles after b12 injection

New symptom (hypersensitive ear) after Cyanocobalamine shot

Behaviour Optometrist

Pls suggest

GP questioning why serum b12 above range if body gets rid of excess b12.

How conclusive is endoscopy?

sublingual B12 pointless?

Enquiry

B12 active blood test

High B12

Neurologist appointment

Visit to hematologist for pernicious anemia

Perpetual exhaustion and fogginess continue to affect my entire life

Did an MRI Brain and Cervical spine for headaches.

do i need to take more b 12 if my levels are 290[200-900]

My next injection is due

Will this deficiency ever resolve

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

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