My next injection is due

[rr1993]

How does everyone feel when there injection is due... I’ve only ever had the loading doses. My next one is 08/08/16. I’m sure I feel a bit forgetful, grumpy, headaches. I don’t know if it’s that or not so i’m curious to know how you feel when your injections coming up.

[Gunj_redjem]

How frequent do u take injections

[rr1993 in reply to Gunj_redjem]

3 monthly

[Nackapan]

After the initial loading dose I was getting symptoms back. I would request it now. You can have them 2 monthly at least. Don't wait until you ill

[clivealive Forum Support]

Hi rr1993

I've been on four weekly injections of cyanocobamalin for over 47 years and definitely "felt the need" in the week before my next one was due. I now have them every three weeks and I still know when I'm due after a fortnight or so.

[Sairbear1]

Every time I read a post like this it makes me sad & so angry that people suffer whilst waiting for their next injection. If I was you, I would keep going back to the doctors with your b12 symptoms and as Martin Hooper said in one of his videos, he tells members that even if they aren't suffering from nerve pain/pins and needles, say that you are. Because you will do if you have to wait anyway! If they do nothing, make another appointment to see someone else, make a telephone appointment, then another one & another.

I have a theory, that if we all keep hounding (for want of a better word) our GP's telling them we feel ill again, surely at some point in time at their GP get togethers (?!), they will have this strange common phenomenon of b12 patients who keep coming back before the 3 months... Hmmm? Maybe there's something in that Mr GP practise manager?

Tell the GP how much better you had been feeling and that you are starting to feel bad again- don't forget your numbness and tingling. At the end of the day, they have to treat neurological symptoms until they go away as per guidelines. Not that guidelines seem to make a difference most of the time!

Also, get some "Better You b12 sublingual spray" off Amazon or local Health Food shop to have in everyday anyway.

Good luck.

[Aegir]

Totally agree with Sairbear1 on pushing the GP for moving up your injection. I had the loading and was told 12 weeks till my first routine injection. This was fine until about 3 weeks before it was due when I started getting symptoms. Headaches, mood swings, lack of concentration and no energy. After making an appointment to see the GP, who's knowledge of severe B12 deficiency and pernicious anaemia was sadly lacking, I could not convince the GP to move up my schedule. NHS protocol was quoted which means budgeting. I have permanent neurological damage, constant pin and needles in my hands and lower legs, even minor personality changes, and yet they stick to their protocols. Push and push hard or buy from Germany like so many of us are forced to do

[Hidden]

I know when I need the next injection as my feet start tingling and jumping with electric shocks, an old injury site on the left one feels on fire, and my hands and fingers join in the fun so I sit shuffling my feet and wringing my hands. An injection just as I am getting into bed sorts the problem out.

There is also the 'injection needed warning device' called my wife. She has an infallible knack of recognising when I need an injection and also when our daughter does.

When our daughter was diagnosed with PA 25 years ago, she was advised by the GP then to know she needed her injection for a week then wait a week before she had it. This crazy notion damn near killed her as she was barely competent at anything by the time she had made the appointment at the surgery. Once we fought the battle, and it really was, to get her doing it herself, things changed and she was persuaded to ditch the waiting time and do the injection as needed.

I cannot see the point of being a brave little soldier and putting up with less than optimal health when a few minutes spent preparing and injecting a non-poisonous, non-addictive, health giving vital elixir of life can make such a difference.