Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for July 2019

Raised MCV

Hi Does anyone know at what level a GP might consider MCV to be a problem and an indication of B12 deficiency? Mine is 99.8fl (80-99) which is marked as...

Hi Does anyone know at what level a GP might consider MCV to be a problem and an...

flibertygibert

•5 years ago

14 Replies

B12 every other day shots making me extremely dizzy

I’m on b12 injections weekly for 1yr and improving v slowly... I read here shots every other day for neuro damage... I have had 3-4 shots every other day and...

I’m on b12 injections weekly for 1yr and improving v slowly... I read here shots...

Gunj_redjem

•5 years ago

1 Reply

GP B12 Serum - 'normal' at 289

Hello everyone. I have just received results of my blood tests. I was being tested for B12 because I am having tingling in my hands and feet - sometimes this...

Hello everyone. I have just received results of my blood tests. I was being test...

Hello1986

•5 years ago

6 Replies

Want to take advantage of all our features? Just log in!

Lost in my brain

Hi, I am new here. I'm sure my story is similar to everyone else. Misdiagnosed for 15 yrs. Last, 5 years, I started falling all the time, bumping into...

Hi, I am new here. I'm sure my story is similar to everyone else. Misdiagnosed f...

15beansoup

•5 years ago

38 Replies

Nail ridges

Does anyone get horizontal nail ridges. I’ve been getting them for a couple of years now. They’re like indents across the nail and just before they’ve grown...

Does anyone get horizontal nail ridges. I’ve been getting them for a couple of y...

Lurcher-lady

•5 years ago

19 Replies

Shaking and jitters

Does anyone get this when their b12 injection is due?

Nackapan

•5 years ago

8 Replies

A shift in symptoms

I'm on B12 injections 2 weekly. I'm on no other medication apart from over the counter pain killers if needed at present. The shift on the positive side are:...

I'm on B12 injections 2 weekly. I'm on no other medication apart from over the c...

Nackapan

•5 years ago

13 Replies

Healthy diet

Hello again, I was encouraged to look at this forum to find out about how to get enough folic, potassium and iron etc from food in order to improve b12...

Hello again, I was encouraged to look at this forum to find out about how to get...

Luac

•5 years ago

5 Replies

I have random symptoms that I have been trying to piece together for a year now

Hello, I am a 26 year old female. When I was 17 I was diagnosed with a genetic mutation called MTHFR which they found through a b-12 deficiency (I tested 70...

Hello, I am a 26 year old female. When I was 17 I was diagnosed with a genetic ...

Newyorknewyork93

•5 years ago

9 Replies

Syringe

What is a concentric tip syringe please. Just trying to find the best value syringe.

What is a concentric tip syringe please. Just trying to find the best value syri...

Lurcher-lady

•5 years ago

2 Replies

Confused about H.pylori?

Hi everyone! I am thoroughly confused about H.pylori and it's connection/or lack of to B12 deficiency/PA. Some medical sites I've seen say that it causes...

Hi everyone! I am thoroughly confused about H.pylori and it's connection/or lack...

liaratsoni

•5 years ago

9 Replies

SYRINGES

As I am on a mission to cut down on plastic I was wondering if it is possible to reuse the plastic syringes? by sterilising them in some way perhaps?

As I am on a mission to cut down on plastic I was wondering if it is possible to...

Vonni7

•5 years ago

16 Replies

Newly diagnosed PA

Just recently got diagnosed with b12 deficiency after having neurological Symptoms for 8 months. On injections now and I can only go one week until burning...

Just recently got diagnosed with b12 deficiency after having neurological Sympto...

Coonass1

•5 years ago

13 Replies

Pernicious anemia, muscle spasms and aching bones

I was diagnosed with pernicious anemia in 2004 and have been having b12 injections since then. Amongst the appalling symptoms I suffer such as low stomach acid...

I was diagnosed with pernicious anemia in 2004 and have been having b12 injectio...

dunc01977

•5 years ago

13 Replies

B12 deficiency related to migraines?

I had terrible nerve damage 15months back because of PA.. after 15months I’m doing much better but I have constant migraines can anyone tell are these...

I had terrible nerve damage 15months back because of PA.. after 15months I’m doi...

Gunj_redjem

•5 years ago

18 Replies

B12 Injection

Hello Everyone, I just had my first b12 shot yesterday and I am going to have 2 next week within 2 days. How long will it take to see the difference in...

Hello Everyone, I just had my first b12 shot yesterday and I am going to have 2...

ShaneWarne

•5 years ago

8 Replies

B12 Self Injecting

To all those who SI with B12, where to you order B12 and syringes from. At the moment I have injections every 8 weeks. My last one was 8 July and ever since...

To all those who SI with B12, where to you order B12 and syringes from. At the ...

Galadou

•5 years ago

4 Replies

Other B12 Symptoms

Does anyone with B12 deficiency have really bad insomnia? I am at my wits end because I can be so tired and then not be able to sleep.

Does anyone with B12 deficiency have really bad insomnia? I am at my wits end b...

Galadou

•5 years ago

30 Replies

Thinning hair

Has anyone had problems with hair loss. I’ve always struggled with fine hair, but recently (6weeks after loading doses) it seems to be shedding more.

Has anyone had problems with hair loss. I’ve always struggled with fine hair, bu...

Lurcher-lady

•5 years ago

15 Replies

GP update

Today I received a letter from the GP saying that your B12 injections will continue, the next being early Sept, and that we are awaiting advice from gastro...

Today I received a letter from the GP saying that your B12 injections will conti...

lesbud1

•5 years ago

6 Replies

Low B12 results - what’s normal ?

I wonder if anyone can advise: My daughter who is in her early 20’s, just had her blood test results back and the GP has said everything is “normal”. Her...

I wonder if anyone can advise: My daughter who is in her early 20’s, just had h...

Elsa1509

•5 years ago

14 Replies

Advice Please - 10yo girl's results

Hi, my 10 yo daughter has had a mix of symptoms over the last year e.g. tummy pains, restless leg, pins and needles, light headedness/dizziness. The tummy...

Hi, my 10 yo daughter has had a mix of symptoms over the last year e.g. tummy pa...

Rustypoo

•5 years ago

7 Replies

Endoscopy results from 8/3/18

Finally got my endoscopy results back after asking quite a bit. They didn’t release then biopsy results so I emailed and asked them to do this as well....

Finally got my endoscopy results back after asking quite a bit. They didn’t rele...

JennaShi

•5 years ago

20 Replies

Cyanocobalamin.

Hi all, been injecting Hydroxocobalamin every other day now with mixed results for the past 9 months and was thinking about trying Cyanocobalamin instead,would...

Hi all, been injecting Hydroxocobalamin every other day now with mixed results f...

Teloch

•5 years ago

5 Replies

B12 pills ? Numbness in face after ? Normal ?

Me Hi Im really nervous. I have been just diagnosed with b12 deficiency. I have been taking the pills for 5 days now. This being I experienced numbness and...

Me Hi Im really nervous. I have been just diagnosed with b12 deficiency. I have...

Reemfali

•5 years ago

114 Replies

False B12 levels and biotin

My Dr. took me totally off my maintenance injections because my b12 was 1567. My iron levels were so high that he decided not to do the iron transfusion. My...

My Dr. took me totally off my maintenance injections because my b12 was 1567. ...

mislauren

•5 years ago

8 Replies

This Looks Promising

Someone is testing delivering B12 using micro-needle arrays. I'm sure someone has already read this article, but I just found it and it looks really...

Someone is testing delivering B12 using micro-needle arrays. I'm sure someone h...

MoKayD

•5 years ago

3 Replies

PA flare ups?

HI! Does anyone know if like other auto immune diseases, PA can have "flare ups" even while taking b12 injections regularly? I seem to have neurological...

HI! Does anyone know if like other auto immune diseases, PA can have "flare ups"...

pslmt

•5 years ago

13 Replies

anaemia

I had 3 heart stents done a year ago, I am now on a blood thinner, my blood test is Serum Ferritin 10.86 B12 247 [ within range ] platelets 114 My...

I had 3 heart stents done a year ago, I am now on a blood thinner, my blood te...

bowler

•5 years ago

7 Replies

Feeling rotten

Hi wondering if anyone suffers from dizziness/light headedness when they are due B12?. Thanks

Hi wondering if anyone suffers from dizziness/light headedness when they are due...

Eviepops

•5 years ago

4 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for July 2019

Raised MCV

B12 every other day shots making me extremely dizzy

GP B12 Serum - 'normal' at 289

Lost in my brain

Nail ridges

Shaking and jitters

A shift in symptoms

Healthy diet

I have random symptoms that I have been trying to piece together for a year now

Syringe

Confused about H.pylori?

SYRINGES

Newly diagnosed PA

Pernicious anemia, muscle spasms and aching bones

B12 deficiency related to migraines?

B12 Injection

B12 Self Injecting

Other B12 Symptoms

Thinning hair

GP update

Low B12 results - what’s normal ?

Advice Please - 10yo girl's results

Endoscopy results from 8/3/18

Cyanocobalamin.

B12 pills ? Numbness in face after ? Normal ?

False B12 levels and biotin

This Looks Promising

PA flare ups?

anaemia

Feeling rotten

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive