Bilirubin levels.

[Vqueen]

Hi, has anyone else had high bilirubin levels. I was diagnosed 4 years ago with gpa. This is the first time my bilirubin has came back very raised. I have an emergency appointment Friday with the rheumatologist consultant and the viable tissue nurse. Just wondering if anyone else has experienced this.

[zoe69 Moderator Volunteer Vasculitis UK]

My bilirubin levels were raised and I had a liver scan that showed some liver damage. I was on azathioprine and steroids at the time.I have had another liver scan recently and there is no change and still no need for intervention.

[Investigator1]

Hi Vqueen. Hope you are well. Yes I had raised Bilburin levels not long after ai stopped taking steroids. As you know I have GPA too. I had a scan and they said I had slightly non alcoholic fatty liver. The Consultant just said “let’s monitor” that was about 3/years ago. She did say at the time it was quite common. Since taking statins (again as a result of steroid use) the bilburin has stabilised. Let us know how you get on. Nick.

[Vqueen]

Thank you both for your replies. Fingers crossed its not as bad as the nurse was thinking it may be. I'll update after my appointment. Hope you are both well.

[AmyS1]

Are you on methotrexate it can increase your bilirubin level?

[Vqueen in reply to AmyS1]

No azathioprine and steroids.