Severe mouth ulcers

[LRM001]

I was diagnosed with GPA in March and have been undergoing treatment with steroids and rutixumab Infusions (last one in August) and next one pla ned for Feb 2025. I have as a result of the illness suffered with a very sore tounge and ulcers which come an go. I was given a 30 day course of Nystatin, which has done very little to resolve this issue. Does anyone have any advice on how I can calm this down, as I've put up with it for so long with no improvement. Many thanks Lee

[PMRpro]

You have told your specialsit about the mouth ulcers - it is one of the things you must report when on rituximab.

Could it be oral lichen planus which can manifest as sores as well as the more usual lacy appearance? RItuximab can also cause that.

[LRM001 in reply to PMRpro]

Thank you so much for your reply and yes, I have told my consultant about the issue hence why he prescribed nystatin oral medication which hasn't really helped.