scalp spots

[Bassace]

hello everyone

I know that sores inside the nose can be a vasculitis symptom. I have this occasionally, but generally my vasculitis is under control, thanks to Rituxan. However, from time to time (every couple months?) I get spots on my scalp. Does anyone else get this symptom? Is it connected to vasculitis?

cheers

[gilders]

I get these scalp spots too. Never considered there was a link between my vasculitis, but perhaps?

[Bassace in reply to gilders]

Thanks gilders. Any treatment success?

[Suzi70 Administrator Vasculitis UK]

your question really interested me as vasculitis is inflammation of the lining of the blood vessels so in theory could affect any part of the body where there is a blood supply. After a little investigation I did find a medical paper written in 2014 discussing scalp lesions associated with EGPA. So it is possible. Have you discussed this new development with your consultant?

[Bassace in reply to Suzi70]

Sorry - I thought I had replied to this. After your reply I found articles online too. I started on Rituxan in 2021, had my last infusion May of 2022 and since then I have been ok - just the odd minor rash or sores inside nose, or scalp spots - nothing that lasts for more than a couple of weeks, tops, so I count myself lucky. I may talk to my rheumatologist about it, but he won’t want to put me on medication unless I really need it. However, thinking about it, it wouldn’t hurt to get some labs done to see what my levels are.