Re-introduction

[suffolkgirl]

Hello everyone. I've not been active on here for some time, so this is by way of a new introduction!

I was diagnosed with GPA in 2012, which made a hole in my nose, and after treatment with cyclophosphamide, azathioprine, and then rituximab, I have now been in remission for several years. The hole in my nose is filled with a silicone prosthesis.

For anyone needing more info my story is on the VUK website.

[Main1234]

hi welcome back, I’m sure your experience with vasculitis will be invaluable to old and new members .

Can I ask are you in any medication presently?

[suffolkgirl in reply to Main1234]

I'm not on medication for vasculitis now. I take meds for diabetes, high blood pressure, pain relief for a worn-out hip, gout prevention, and a nasal spray. I think that's about it- quite enough!

[Main1234 in reply to suffolkgirl]

As you say quite enough.

[suffolkgirl in reply to Main1234]

I think I may have missed one or two.

[Mooka]

Welcome back. I’m sure the fact that you are still in remission will be a great inspiration to many on here.

[michichgo]

Hi Suffolkgirl and welcome back. I was diagnosed with MPA in 2013 and I too am in remission. Like you, I require a whole host of medications. The systemic effects of this disease have certainly taken their toll on my body but overall I'm doing okay. Glad you've returned.

Cheers from across the pond.

Michele

[lollypocket]

Hi suffolkgirl,

I have been reading here rather than posting for quite some time. I was diagnosed in 2015 with GPA and had steroids, mycophenolate and then rituximab. I have been in remission, and apart from drugs for other problems, I take Septrin as a prophylactic. I am having a few symptoms of late and think I may be relapsing. Have had my rheumy appt postponed twice now. Hoping I get seen in January 🤞