RAIRDA have launched a survey which aims to gather the views & experiences of people living in Wales with rare autoimmune rheumatic diseases

[John_Mills]

rairda.org/2021/06/14/raird...

For those members who live in “WALES” only!!

RAIRDA have launched a new survey which aims to gather the views and experiences of people living in Wales with rare autoimmune rheumatic diseases (RAIRDs). This will support their submission to the Welsh Government as part of their consultation on new guidance for services for arthritis and long-term musculoskeletal conditions. This guidance is meant to advise and guide NHS health boards on the way they design services for people with these diseases, including RAIRDs like lupus, scleroderma, vasculitis and Sjögren’s syndrome.

Through sharing the results of this survey with the Welsh Government we hope to highlight the needs and experiences of people with RAIRDs and give a clearer picture of how people with these diseases are currently cared for, and their priorities, so that this informs new guidance.

This survey is anonymous. Most questions are optional and can be skipped if you prefer not to answer. There are 20 questions, most of which are multiple choice.

[Chipper03]

Thanks for the link. I’ve completed it and hope lots of others in Wales do too. It’s a very good survey with space to add extra comments if you want to. Here’s hoping RAIRDA can help improve services for vasculitis and other patients, in Wales and across the UK.