Hi everyone

[Rarity1]

I’m interested in any help or support groups in the Essex area . Recently diagnosed with Churg Strauss Syndrome (EGPA VASCULITIS)

[Mooka]

vasculitis.org.uk/about/fin...

This is a list from the vasculitis U.K. website of official support groups. Not sure whereabouts I’m Essex you are. I don’t think groups will be meeting up at the moment though.

[Rarity1 in reply to Mooka]

Thank you again, I’m South East Essex

[Mooka in reply to Rarity1]

A lot of us have to travel to these meetings. Not sure if yours would be Cambridge or Kent.

[Rarity1 in reply to Mooka]

Thank you for letting me know

[John_Mills Volunteer]

All the Vasculitis support groups are listed here vasculitis.org.uk/about/fin... if it helps.

The online groups are this HU group and the Facebook group , scroll down this page of the website vasculitis.org.uk/

[Rarity1 in reply to John_Mills]

Again thank you

[John_Mills Volunteer]

I hope your doctors are looking after you well? EGPA is extremely rare so it’s important you are seeing doctors with experience, knowledge and understanding of EGPA.

[Rarity1]

Thank you 🙏🏼