I’m interested in any help or support groups in the Essex area . Recently diagnosed with Churg Strauss Syndrome (EGPA VASCULITIS)
Hi everyone : I’m interested in any help or... - Vasculitis UK
Hi everyone
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Rarity1
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vasculitis.org.uk/about/fin...
This is a list from the vasculitis U.K. website of official support groups. Not sure whereabouts I’m Essex you are. I don’t think groups will be meeting up at the moment though.
John_MillsVolunteer
All the Vasculitis support groups are listed here vasculitis.org.uk/about/fin... if it helps.
The online groups are this HU group and the Facebook group , scroll down this page of the website vasculitis.org.uk/
John_MillsVolunteer
I hope your doctors are looking after you well? EGPA is extremely rare so it’s important you are seeing doctors with experience, knowledge and understanding of EGPA.
Thank you 🙏🏼
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