Hello, I'm new on this forum, although I have been on the lupus healthunlocked forum since last year.
I have been diagnosed with lupus in Sep 2012 and started appropriate treatment as a result. Since then the vast majority of my symptoms have come under control but two.
One of these symptoms not going away is numbness in my hands. I get this every night. I had brain MRI which was ok, muscle and nerve conduction tests that ruled out peripheral neuropathy and carpal tunnel syndrome but showed slight muscle weakness on my left side. A neck MRI showed spondylitis but mild. My rheumatologist suggested I change my pillow and do exercises to improve posture. I did both of these but no change in my numbness. And it isn't as if I sleep on my hands, the numbness occurs even when my hands are free. Sometimes if I sleep on my tummy, the side of the face and neck onto which I sleep also goes numb.
The second symptom that isn't resolving is that sometimes my left eye goes filmy although no film appears on it, just a sensation. That is accompanied by headache and eye ache that do not respond to regular painkillers. The ophthalmologist checked the eye and saw no reticular vasculitis, although he did see some slight nerve inflammation that he said it was addressed by the steroids I was taking at the time.
I'm not on steroids at the moment, only on Plaquenil. As some of the symptoms for lupus are similar to vasculitis, and given that both respond to steroid treatment, I'm wondering whether these two separate symptoms have been "mislabeled".
Does anyone suffer from such numbness, please?