Are there any Suffolk/Essex Behcets sufferers who have 5 minutes spare?

[ferris]

I'm struggling to find a diagnosis to my liver condition - the newest suggestion is Behcets and something else\?

[John_Mills Volunteer]

behcetsuk.healthunlocked.com/ If you don't find anyone in this community who can help you might find someone in the community above.

take care

Susan and John

[Zebra]

Hi, I've been diagnosed with Behcet's for 2 years now and had it for many more. I co-ordinate the East of England support group of the Behcet's Syndrome Society and can gladly put you in touch with others in Suffolk and Essex. I'm in Cambridge myself.

Do feel free to contact me and ask and share anything you'd like.

Best wishes

Zoe

[ferris in reply to Zebra]

Zoe - thanx 4ur response I would appreciate some contact details for the Essex & Suffolk area. The problem I have is that the diagnosis is still underway but I am 99.9% sure I have had most if not all symptoms for most of my life.

The illness caused me jaundice and seems to be centred around my liver at the moment. Finding similar cases of 40 something men with Liver issue/Bechets and ADHD is going to be difficult! Thanx again - Jay

[Zebra]

Hi Jay,

Think I've seen you on the Behcet's Disease Facebook Group which I'm one of the admins for. I know a couple of men with Behcet's who are probably in 40s (or possibly 50s) in the Suffolk area and will put you in touch.

My own email is: [e-mail] so do email me with any questions.

I'll contact the guys and get them to make contact with you.

Which hospital are you under currently? I hope that you are getting the help that you need. The jaundice sounds nasty - I've not had that.

Anyway, please don't hesitate to contact me with anything

Best wishes

Zoe