any one with wg got hypoxia?: I have had wg... - Vasculitis UK

Vasculitis UK

7,775 members6,749 posts

any one with wg got hypoxia?

kath12341 profile image
2 Replies

I have had wg for 5and a half years drug maintained remission have been unwell for several months have had some breathlessness prior when over doing it. But have now been told I have Hypoxia? so am okay when sat resting but get badly out of breath when doing anything much at all also consultant said I had fybrositis? although nothing showing in chest x ray. Has anybody else been told this have had lung function ecg on heart and eco cardio gram consultan says may refer me to cardiology for further test what other heart test are likely?

Written by
kath12341 profile image
kath12341
To view profiles and participate in discussions please or .
Read more about...
2 Replies
John_Mills profile image
John_MillsVolunteer

Hi Kath,

I presume you have had bloods done and you are confirmed NOT anaemic. Did the consultant say fibrositis (fibromyalgia) or fibrosis?

John

kath12341 profile image
kath12341

Hi John and Sue I have blood done every 6-8 weeks definetley did not say fybromyalgia not hundred percent sure now whether it was fibrositis or fibrosis did say that this hadnt shown in x ray but as my breathlessness on movment was not improving, this was what was wrong What is the difference between the two?

You may also like...

Has anyone got WG?

treatments others have had and their effects. I get depressed and angry at having this incurable...

Son of 14 just diagnosed with WG, any advice?

plasma replacement to try to halt bleeding in the lungs and methylprednisolene. Air ambulance back...

My WG journey continues

vasculitis activity, so the cyclo had done its job, I have now been told I will be prescribed...

Just been diagnosed with WG

just been diagnosed with WG Im not a 100% what it is still confused but getting there. I have...

wg,kidney involvement and steroids

anyone been able to get off long term steroid use,when they have kidney involvement been on the 7.5