just watching BBC Parliament channel, showing a discussion with N.I.C.E.
laura weir chair, patients involved in nice.
barbara keeley labour mp for worsley & eccles south.
they raised two importat points:-
lw - nice are taking over med's for rare diseases, the reps for people with rare diseases need to know dates for consultations.
bk - they are such a small number they feel they will not be heard.
it moved on to other issues.