Last Tuesday I had my second cyclophosphamide infusion.
Two weeks earlier I'd found the first one straightforward, with no nausea and just one wonky day a couple of days later. I was so pleased and felt quite optimistic for the first time in months! Even able to reduce my steroid dose again -just 15.....so I went off to the second one with high hopes.
The second time I've had every reaction going, including a rash, speckled with nasty red spots, that has covered me from head to foot! The clinic have told me to take Cetrizine, and put my steroids back up to 20, and to see them next week. But has anyone else had this problem? The rash has retreated a bit, but my trunk arms and legs are a horrible sight. Methotrexate didn't work for me, so I really want this to be the drug that helps me out.