Posts - Vasculitis UK | HealthUnlocked

Volunteer•12 years ago

1 Reply

Has anyone been called for Jury Service while they have suffered with Vasculitis? Any advice would be appreciated..

Volunteer•12 years ago

John and I just wanted to thank Tracy for organising a wonderful ball in memory of her partner Gordon, Gordon had a particular aggressive form of WG and was...

"Tracy's Little T Ball" at Ickworth House, in memory of Gordon, fundraising for Vasculitis UK

John and I just wanted to thank Tracy for organising a wonderful ball in memory ...

I have been given these and have a really dry mouth and throat. I have never taken them before as I usually have Amoxicillin. Just wondered if this was due to...

Volunteer•12 years ago

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Has anyone taken Clarithromycin antibiotic?

I have been given these and have a really dry mouth and throat. I have never tak...

LynneJ

Vasculitis UK•12 years ago

7 Replies

Does anyone who belongs to the community have a child with HSP? (Henoch-Schonlein Purpura)

Volunteer•12 years ago

I am about to change my immuno-supression to Rituximab and have been reading the quite serious side- effects, does anyone taking this drug have any advice or...

Does anyone have any advice on taking Rituximab?

I am about to change my immuno-supression to Rituximab and have been reading the...

milliewin

•12 years ago

13 Replies

Change of meds - thoughts, experiences please

I finally saw the rheumatologist on Monday (5 month wait! and had to travel to another hospital in the trust to see him!). I had been on Methotrexate...

I finally saw the rheumatologist on Monday (5 month wait! and had to travel to a...

Porky

•12 years ago

We all read these posts at different times, days. I usually like to try and see that everyone gets a response - even if it's only to reassure, or acknowledge...

I'm reading but not up to many answers.

We all read these posts at different times, days. I usually like to try and se...

Volunteer•12 years ago

15 Replies

Has anyone had their benefits stopped abruptly with no explanation or taken out Critial Illness Insurance & the company have refused to pay?

highlighting the cutting-edge work of research teams and how it impacts patients. How can world-class research improve your care and treatment?...

Volunteer•12 years ago

3 Replies

Join the National Institute for Health Research (NIHR) Centre for a FREE Showcase Event in London

highlighting the cutting-edge work of research teams and how it impacts patients...

I have cerebral vasculitis and in the last few days have developed a painful black area on middle sole of right foot which is spreading accross the foot. Has...

Volunteer•12 years ago

1 Reply

Black area on foot

I have cerebral vasculitis and in the last few days have developed a painful bla...

Sunshaz

•12 years ago

Did any one read this article at the weekend......

Pharmaceutical company, Sanofi stands accused of putting profit before patients after withdrawing a drug ......

Volunteer•12 years ago

I am going to arrange a sponsored walk for Vasculitis UK next June once I am in remission. Details are currently posted in the Facebook Group. Let me know...

Organising A Sponsored Walk

I am going to arrange a sponsored walk for Vasculitis UK next June once I am in ...

Wellsie

•12 years ago

8 Replies

anyone got hayfever NOW?

my eyes are streaming, but it's autumn! regards, sandra.

Volunteer•12 years ago

loud{to my mind} and annoying pulse.This does not occur during the day and if it does is being masked by everyday sounds.Takes ages to get to sleep and if...

anybody with wg hearing problem help? I have lost hearing in left ear and when i remove my hearing-aid at night i then experience a very

loud{to my mind} and annoying pulse.This does not occur during the day and if it...

buddy70

•12 years ago

12 Replies

Mouth issue

Near the end of August I got a fairly bad eye infection (left eye), after a day or so my face started to go numb on the left side. A few days after the...

Near the end of August I got a fairly bad eye infection (left eye), after a day ...

annie330

•12 years ago

1 Reply

good idea for support meetings?

there are a growing number of meetings across the country with a wide range of knowledgeable speakers, each with valuable information. is it possible for...

there are a growing number of meetings across the country with a wide range of k...

http://www.justgiving.com/InMemoryofNeale

Volunteer•12 years ago

3 Replies

Natalie's walk, today from St Helens to Southport in memory of Natalie's father Neale

Volunteer•12 years ago

Just wanted to say how we enjoyed this weekend. Met some lovely people, (new and old friends), listened to three great speakers, lots of people bought lots of...

Cambridge Support Group Meeting and West Midlands Support Group meeting

Just wanted to say how we enjoyed this weekend. Met some lovely people, (new and...

The next Lincolnshire Support Group meeting will take place on Sunday October 28th at 40, North St., DIGBY Lincoln LN4 3LY, starting at 2pm. Informal, come...

Volunteer•12 years ago

3 Replies

Lincolnshire Support Group meeting - October 28th

The next Lincolnshire Support Group meeting will take place on Sunday October 28...

Ayla

Volunteer•12 years ago

I read it on bbc red button but can't find it today. sandra.

bbc news 11/10/12 "claimants also to blame for benefit refusal anyone see it?

Volunteer•12 years ago

Hi I've just been diagnosed with Rheumatoid Vasculitis which is secondary to Rheumatoid Arthritis. I don't know anything about RV and wondered whether anyone...

Rheumatoid Vasculitis

Hi I've just been diagnosed with Rheumatoid Vasculitis which is secondary to Rhe...

Wolf52

•12 years ago

After reading the problems Short Sarah & others have had with doctors & consultants not understanding what is "vasculitis", and what is the best way forward....

An Ego Buster, a simple solution, or a step too far

After reading the problems Short Sarah & others have had with doctors & consulta...

Tony-LakeDistrict

•12 years ago

You can now view a PDF copy of the Vasculitis UK Autumn 2012 Newsletter/Journal on the Trust's website: http://www.vasculitis.org.uk/about/newsletter

Vasculitis UK - Autumn 2012 Newsletter/Journal

You can now view a PDF copy of the Vasculitis UK Autumn 2012 Newsletter/Journal ...

PatriciaAnn

•12 years ago

I was diagnosed with Central Nervous System Vas last year (Sept 2011) after a lengthy stay in hospital (a lots of misdiagnoses before handd) and when I got out...

Am I stressing for no reason or does this seem like unfair treatment and a valid reason to be upset?

I was diagnosed with Central Nervous System Vas last year (Sept 2011) after a le...

ShortSarah

•12 years ago

9 Replies

Should I have a blocked tear duct repaired under general anaesthetic?

I was diagnosed with Cerebral Vasculitis 12 months ago and also suffered a stroke behind my left eye causing 30% loss of vision. It also caused a blocked tear...

I was diagnosed with Cerebral Vasculitis 12 months ago and also suffered a strok...

LMB2

•12 years ago

9 Replies

Does anyone have regular urine dipstick tests done either at the hospital or at the GP practice?

Some doctors/consultants recommend regular urine dipsticks in cases where there has been kidney involvment or the risk of kidney involvement, as the kidneys...

Some doctors/consultants recommend regular urine dipsticks in cases where there ...

http://www.vasculitis.org.uk/events/westmids-vsg-oct-12 http://www.vasculitis.org.uk/events/cambridge-vsg-oct-12 Please support David and Jenny if you can...

Volunteer•12 years ago

26 Replies

Two Vasculitis Support Group Meetings this weekend. West Midlands on Sunday, Cambridge on Saturday.

http://www.vasculitis.org.uk/events/westmids-vsg-oct-12 http://www.vasculitis.o...

There are just a few tickets left if anyone would like to go... The ball will be opened by Dr Richard Watts who was co Author of "Vasculitis in Clinical...

Volunteer•12 years ago

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Charity Ball fundraising for Vasculitis UK at Bury St Edmunds just a few tickets left...

There are just a few tickets left if anyone would like to go... The ball will be...

http://www.benefitsandwork.co.uk/personal-independence-payment-pip

Volunteer•12 years ago

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Some information from Benefits and Work regarding PIP (Personal Independence Payment)

Volunteer•12 years ago