Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,783 members • 6,757 posts

All posts for October 2012

Next Yorkshire (North) Meeting

The majority of the comments from the Yorkshire meeting would like to have another one in six months. To all the people who would like to get involved in the...

The majority of the comments from the Yorkshire meeting would like to have anoth...

LynneJ

Vasculitis UK•12 years ago

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Yorkshire (North) Support Group Meeting

I would just like to thank all the members that attended the Yorkshire(North) Support group meeting for making it a success. I hope you all enjoyed it. As it...

I would just like to thank all the members that attended the Yorkshire(North) Su...

LynneJ

Vasculitis UK•12 years ago

2 Replies

pain clinic [humour]

I'm going to join a pain clinic, now do I get a choice? 'cos if we'll have to ask at once, they might not hear my voice. all the good pains, will go in...

I'm going to join a pain clinic, now do I get a choice? 'cos if we'll have to ...

hamble99b

Volunteer•12 years ago

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Hi I have just entered a question for some help about my eye and ear...probably a flare?

I have had probs with loss of hearing/noise in right ear for 6 months and now have recurrent episodes of posterior scleritis in left eye. Having read the...

I have had probs with loss of hearing/noise in right ear for 6 months and now ha...

Hidden

•12 years ago

9 Replies

Walking issues Need to use a wheelchair

Hi there I'm 49 years of age I have a thyroid condition and also sjogrens syndrome which is a autoimmune disease I'm not currently getting any treatment apart...

Hi there I'm 49 years of age I have a thyroid condition and also sjogrens syndro...

twinklestarrs

•12 years ago

4 Replies

Sweating

Seem to be struggling these days with regulating body temperature. Changed the bed sheets today and it made me sweat. Anyone else experience this? I wonder if...

Seem to be struggling these days with regulating body temperature. Changed the b...

Wellsie

•12 years ago

14 Replies

Methotrexate & Co-Trimoxazole (Septrim Forte) advice needed about taking both

Addenbrookes put my husband (he has WG) on Methotrexate and he was already on Bactrim/Septrim Forte/Co-Trioxazole. He's on 15mg Meth per week and 160mg/800mg...

Addenbrookes put my husband (he has WG) on Methotrexate and he was already on Ba...

Nadine99

•12 years ago

3 Replies

I have M.P.. I also have had a colostomy for 25 years

I have M.P.. I also have had a colostomy for 25 years. Since starting treatment 5 years ago, I have had skin "problems" caused by the repeated removal of the...

I have M.P.. I also have had a colostomy for 25 years. Since starting treatment...

Tony-LakeDistrict

•12 years ago

11 Replies

Sores in my nose....

I've been living with Churg-Strauss for eight years and have been up and down the pred doses in that time. For the last few months I've been experiencing sores...

I've been living with Churg-Strauss for eight years and have been up and down th...

laidbackreader

•12 years ago

6 Replies

A Big Thank you

A big thank you to all that have replied to the invitation to the first Yorkshire(North) Support Group. at Gomersal Park Hotel, Cleckheaton this Sunday from...

A big thank you to all that have replied to the invitation to the first Yorkshi...

LynneJ

Vasculitis UK•12 years ago

1 Reply

Side Effects of Methotrexate

Hi, Has anyone had any significant side effects taking Methtrexate? If so, what were they and how long were you on it before the side effects surfaced....

Hi, Has anyone had any significant side effects taking Methtrexate? If so, w...

HiveMind

•12 years ago

9 Replies

Has anyone had their tear ducts rebuilt?

DevonLottie

•12 years ago

5 Replies

Please look at the petition to stop local health services being broken up & taken over by irresponsible private companies

https://secure.38degrees.org.uk/page/s/sign-the-petition-to-local-doctors#petition Our NHS is precious! ?John feels very strongly about this ..please sign...

https://secure.38degrees.org.uk/page/s/sign-the-petition-to-local-doctors#petiti...

John_Mills

Volunteer•12 years ago

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Anyone in the west country interested in a weekend lunch meeting for the West Country Vasculitis Support Group?

We usually meet during the week but wondered whether there is anyone in the West Country who would like to join us but could only make a weekend lunch. If so,...

We usually meet during the week but wondered whether there is anyone in the West...

DevonLottie

•12 years ago

2 Replies

Fundraising Events happening this weekend and next weekend for Vasculitis UK

Please give them your support and if you see them walking or running in your area give them a bit of a cheer .. :-) Mark in Conniston...

Please give them your support and if you see them walking or running in your are...

John_Mills

Volunteer•12 years ago

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Vasculitis Support Group Meetings (formal and informal) reminder this weekend and next weekend.

North Yorkshire first meeting Sunday the 7th October. Alan Pollard Senior Specialist Nurse, John Mills Chair of Vuk and Pat Fearnside Vice Chair of Vuk will be...

North Yorkshire first meeting Sunday the 7th October. Alan Pollard Senior Specia...

John_Mills

Volunteer•12 years ago

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ode to ATOS bt sandra

hello, I believe there are some people who work for ESA and when you've had too much of your pain they take it all away! they send you for a Med eekle...

hello, I believe there are some people who work for ESA and when you've had to...

hamble99b

Volunteer•12 years ago

6 Replies

wg and breathlesness

Had wg since 2007 found that if i get over tired I get brethless and have managed to conyrol this by taking annual leave felxi from work. Have had 2 hospital...

Had wg since 2007 found that if i get over tired I get brethless and have manag...

kath12341

•12 years ago

5 Replies

Cyclophosphamide Cycle 6, and 4 more appointments done and progress

Last week was a good week, completing 4 appointments at UHCW. Had some good news that the blood supply to my organs is good from the aorta arterialgram...

Last week was a good week, completing 4 appointments at UHCW. Had some good new...

Wellsie

•12 years ago

1 Reply

Latest newsletter from Benefits and Work October 2012

Not sure I want to share this... October 2012 Benefits and Work newsletter http://www.benefitsandwork.co.uk/news/latest-news/1563-2-october-newsletter

Not sure I want to share this... October 2012 Benefits and Work newsletter http...

John_Mills

Volunteer•12 years ago

1 Reply

Warm Home Discount Scheme £130 off electricity!!

most of the countries big Energy suppliers take part in the governments Warm Home Discount scheme which benefits mainly pensioners. However some of them allow...

most of the countries big Energy suppliers take part in the governments Warm Hom...

sanromar

•12 years ago

4 Replies

Vasculitis Teddies

Hi all I have just received my vaculitis teddy and he/she is really cute and its all in aid of such a good cause!

Hi all I have just received my vaculitis teddy and he/she is really cute and...

Mooka

•12 years ago

2 Replies

Persistent proteinuria in urine.Any experience.

tamidi

•12 years ago

6 Replies

Interesting Article on Hypocomplementemic Urticarial Vasculitis Syndrome

I found this article last night; it's about the most complete summary of HUVS that I have seen to date. Hypocomplementemic Urticarial Vasculitis Syndrome -...

I found this article last night; it's about the most complete summary of HUVS th...

RichardE

Volunteer•12 years ago

3 Replies

Newly Diagnosed...

I've just been diagnosed with vasculitis. Haven't even got a specific diagnosis yet as my PET scan isn't until next tues. Symptons are an inflamed aorta blood...

I've just been diagnosed with vasculitis. Haven't even got a specific diagnosis ...

MsAscerbic

•12 years ago

9 Replies

Warm Home Discount Scheme

Hi all, Last year I signed up to the warm Home discount scheme, this helped me save some money off my electric bill, as I am claiming benefits... Last year...

Hi all, Last year I signed up to the warm Home discount scheme, this helped m...

Regie79

•12 years ago

2 Replies

I need advice

I have been off work since 4th June 2012. My GP tells me I will be fit to return to work provided that my employer makes some reasonable adjustments to my...

I have been off work since 4th June 2012. My GP tells me I will be fit to return...

northendchamps

•12 years ago

6 Replies

Does anyone have microscopic polyangiitis

tamidi

•12 years ago

25 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for October 2012

Next Yorkshire (North) Meeting

Yorkshire (North) Support Group Meeting

pain clinic [humour]

Hi I have just entered a question for some help about my eye and ear...probably a flare?

Walking issues Need to use a wheelchair

Sweating

Methotrexate & Co-Trimoxazole (Septrim Forte) advice needed about taking both

I have M.P.. I also have had a colostomy for 25 years

Sores in my nose....

A Big Thank you

Side Effects of Methotrexate

Has anyone had their tear ducts rebuilt?

Please look at the petition to stop local health services being broken up & taken over by irresponsible private companies

Anyone in the west country interested in a weekend lunch meeting for the West Country Vasculitis Support Group?

Fundraising Events happening this weekend and next weekend for Vasculitis UK

Vasculitis Support Group Meetings (formal and informal) reminder this weekend and next weekend.

ode to ATOS bt sandra

wg and breathlesness

Cyclophosphamide Cycle 6, and 4 more appointments done and progress

Latest newsletter from Benefits and Work October 2012

Warm Home Discount Scheme £130 off electricity!!

Vasculitis Teddies

Persistent proteinuria in urine.Any experience.

Interesting Article on Hypocomplementemic Urticarial Vasculitis Syndrome

Newly Diagnosed...

Warm Home Discount Scheme

I need advice

Does anyone have microscopic polyangiitis

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