Low Blood platelets

[Bruffingtons2]

Hello to all and hope warm weather helping in UK.

Anyone have/had low platelet count with Scleroderma?

If so, did any treatment improve it please as mine low.

Thanks to all and take care.

Bruffingtons2

[Nisrinita40]

Hello,

Did you get by any chance the AstraZeneca vaccine recently as this causes low platelet count? I haven’t found anything yet that scleroderma causes low platelet count, but I could be wrong. Good luck

[JennerLayne]

I am DX'd with Sine Scleroderma and have been steadily dropping platelets since January when they were around 115,000 . . . now around 42,000. My Rheumatologist wasn't too concerned when I saw her recently because I was recovering from a surgery to fix GAVE Disease for bleeding in the stomach. She did bloodwork, but they were too sticky and the lab couldn't get an appropriate count.

That said, I also have PBC and AIH which have placed me at stage 4 cirrhosis and now my spleen is enlarged. My hepatologist will be checking bloodwork in two weeks and she has requested he get a platelet count. Anxious to know if anything has changed. If not, perhaps my Hep will suggest a treatment? I'll keep you posted.

[Bruffingtons2 in reply to JennerLayne]

Hello Jenner and thank you for letting me know this information.i I hope that you have fully recovered form your surgery and hope for good news about your spleen.

Do let me know how things go with your Hep.

kind regards and take care.

Bruffingtons

[Intimeslikethese]

What info I gather from low platlet...info pharmacist to avoid all meds that promote bleeding. Avoid aspirin, ibuprofen and use only acetaminophen. Avoid meat tenderizers , MSG and pineapple, especially when eating out. Avoid smoking and drinking alcohol. If of child bearing age, avoid a multiple childbirths. Promote healthy gums. Monitor the spleen

[Bruffingtons2 in reply to Intimeslikethese]

Hello intimeslikethese and thank you for this information.. apparently Scleraderma can affect the platelet levels and my haematologists monitor every week! Been on steroids that make no difference.Bruffingtons2

[Intimeslikethese]

Also when phlebotomist takes bloodwork, ask to shake blood vial immediately and vigorously. It makes a big difference in the result count.

[Bruffingtons2 in reply to Intimeslikethese]

Thank-you for this advice too.. shall ask them to do this.Bruffingtons2