Raynaurds disease : Does anyone with... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

11,016 members5,534 posts

Raynaurds disease

Seeley profile image
4 Replies

Does anyone with raynaud's disease get it in the mouth to. A pic of my leg .

Written by
Seeley profile image
Seeley
To view profiles and participate in discussions please or .
4 Replies
DJK99 profile image
DJK99

Hi again Seeley - saw your other photos of your arm...is this new? Have you discussed with any clinicians? This doesn't looks like raynauds, which I have in my hands and feet severely but am on meds which really help hugely.. (although I do get a much lesser degree of your pic now and then in very cold weather - but not as significant as yours) it looks like:

Livedo reticularis

Livedo reticularis is a skin condition caused by small blood clots that develop inside the blood vessels of the skin.

It causes the skin to take on a blotchy red or blue appearance. Some people also develop ulcers (sores) and nodules (bumps).

These symptoms are often more severe in cold weather.

That was from the link to nhs.uk/conditions/antiphosp...

As I said before, I'm not a doc - but I think it looks as if you should get someone to look at this very soon. Have you compared it to photos on the web? Just put in "mottled skin" and look at "images" on google.

Have you had your vaccines recently?

Best wishes D

Seeley profile image
Seeley in reply toDJK99

Hi yes my Dr knows about this and has done for many years, I just had my first jab a few weeks ago, as I am diabetic due another 1 soon thanks .

Sanmateogirl107 profile image
Sanmateogirl107

ask doctor about prazosin 1 mg ok hope that helps love julieanna

Seeley profile image
Seeley in reply toSanmateogirl107

Okay will do thanks x

Not what you're looking for?

You may also like...

Raynaurds ?

My Doctor keeps telling me raynaurds is common and I have nothing to worry about . But my hands are...
Tay171 profile image

Is Raynaurds An Auto Immune Or An Auto Survival Spasm

As i dont think it attacks the body tissues itself Like Arthritis, It is a spasm designed to...

Has anyone ever tried camping outdoors in our lovely uk weather..I hav secondry raynaurds..

I would love to be able to take my kids camping over the holidays iv been looking at buying a tent!...
fruitpastle profile image

Chronic Kidney Disease

Hi, has anyone else been diagnosed with CKD in relation to Scleroderma or connective tissue...
AMDP profile image

Undifferenated connective tissue disease??

I was diagnosed with raynauds about 8 years ago was told it was primary raynauds and have just got...
Emma020884 profile image