Raynaurds disease

[Seeley]

Pic of my arm

[DJK99]

Hi Seeley - hmmm have you sent that to your clinicians? Or asked to see your GP? That looks like er, lived reticularis... but I'm not a doc. It is a new thing?

[Seeley in reply to DJK99]

Hi DJK99 thanks for your reply, I have this all over my body most of the time, im 43 years old and have had this since I was 18 years old, my Dr doesn't seem to think anything can be done so I just suffer with it, my hands are always like this .

Colour pic

[DJK99 in reply to Seeley]

Hey Seeley - Yes - that's raynauds. Here's mine pre nifedipine MR. Mine was severe and just put up with it for years... the meds changed my life.

You DEFINITELY need a new doc to do blood tests and refer you to rheumatology. Crikey. What a (sorry) terrible GP!

Did you read all of the NHS link I sent you? Please do a Google and read up on it all - present it to your gp and ask for relevant blood tests and I'm sure he'll do a little reading up himself.. it's about time. JMiller was on the money! Please make an appointment as soon as you can and let us know what happens? If you posted that on the Lupus Uk site everyone would have responded. Maybe search for livedo reticularis on the Lupus UK hub here on Healthunlocked and see what posts say? Take care. D

Raynauds in all fingers - white stage (no blood)

[Seeley in reply to DJK99]

Aww thanks for all your info, your hand looks bad too x

[DJK99 in reply to Seeley]

You are very welcome... I do hope your GP sits up and listens. That photo was about 6yrs ago... pre my start on nifedipine MR meds... really changed things for the better. Have a look on the SRUK website to learn more about raynauds... Hope you receive better care very soon Dx

[Jmiller623]

Looks like livedo reticularis. I attached a picture of my hand. I get this on my arms, legs, abdomen and thighs are the worse.

I have SLE and aPL positive on Plaquenil, IVIG, aspirin. You should be checked for lupus, rheumatoid arthritis and antiphospholipid with that rash. It can sometimes be benign but you definitely need to be evaluated by a physician. Might be a good idea to set up a derm appt as well. They could maybe biopsy it and give you answers.

Hope this helps. Sending hugs. ❤️xx

Livedo

[Jmiller623 in reply to Jmiller623]

And your hands look like Raynauds. Mine were always blue and red. My tips get white. I think you deserve to at least have some labs looked at.

Raynauds

[Seeley in reply to Jmiller623]

Hi thanks for all your info, I do have arthritis in both wrist, but am unaware if it has anything to do with this, my gp is not very helpful nor are other people I has seen in the past, not that I have ever been transferred to any other person in profession x

[Jmiller623 in reply to Seeley]

Unfortunately, I want to say we all have run into this. If you have joint pain, Raynauds and livedo then you should at least have an ANA and RF sent off. If that hasn’t been done, it’s definitely time for a new GP. Your symptoms shouldn’t be dismissed.

Remember these words: It is not in your head and you are not going crazy. As time goes on, you’ll find out who is in your corner and who isn’t. Those who try to gaslight you or make you feel like nothing is wrong is a red flag. Kindly and politely tell them that they aren’t a good match and find another if possible.

Hang in there and keep us up to date. You should also consider joining the Lupus UK group as well. There are some great people on there who can also help guide you as well.

[Seeley in reply to Jmiller623]

Yes thanks Jmiller623 I will do, oh I ment to say last year when it was really cold I got chilblains on my fingers an toes .

Ok

[Seeley in reply to Jmiller623]

All my pics are taken in my home were its warm

Ok

[Jmiller623 in reply to Seeley]

That’s bad. Your GP could at least offer nifedipine or something to help with that. I’m so sorry you’re going through this. You 100% need a new GP after seeing this last pic.

[Seeley in reply to Jmiller623]

Yes I will go for a second option thanks x

[Tiggywoos]

Hi Seeley Defo join lupus forum xx

[Seeley in reply to Tiggywoos]

Yes I will thanks x

[sharisika]

Hi Seeley, I believe that is called Livedo reticularis and is thought to be due to spasms of the blood vessels or an abnormality of the circulation near the skin surface. It makes the skin, usually on the legs, look mottled and purplish, in sort of a netlike pattern with distinct borders