GTN Patches

[TopCat07]

Hi All,

I joined this community not too long ago and I’ve been looking at some of the posts that come up. I was just wondering if anyone has any experience with using GTN Patches? I’ve had a consult with my Dr today who has recommended them and I’ve just been reading a few articles I could find - however these focussed on the side effects out weighing the benefits. I just wondered if anyone on here has experience with them?

I’m keen to try to not take more tablets for my disease and want to try and keep it that way. I’d be really grateful and interested to hear from other people like me that struggle with this condition.

Thanking you in advance with kind wishes.

[Melirm]

I was prescribed GTN patches for my reynaulds. I used them for a while, but in the end the headache they gave me was worse then the Reynaulds.

[TopCat07 in reply to Melirm]

Thank you. Good to be aware of side effects. I had this when I started Sildenafil, but thankfully I tolerate it well now. Although the facial flushes sometimes still get me!

Thank you for your reply. 🙂

[Montaza]

I use them and they keep my hands warm and stop them going blue with every small change in temperature. They come in different doses so you can adjust strength. You must not keep them on 24 hours. I remove them at night.

[TopCat07 in reply to Montaza]

This is the problem I’m having and it seems to happen more and more. Hands are literally like a chameleon and change colour so regularly. I’m hoping that they’ll really help. Thank you for your reply and I won’t wear them all the time - thanks for the tip. No one actually told me that yet 🙂🙂

[Montaza in reply to TopCat07]

No problem, anytime. I've had this stupid disease for over 30 years and have tried a few things.

[Sanmateogirl107]

have you tried wild lettuce extract for pain ebay, wild mt rose herbs has it it works great for my pain 10 drops under the tongue morning and night. good luck hugs for a better day love julieanna

[TopCat07 in reply to Sanmateogirl107]

No, I haven’t tried anything herbal/natural yet. We did have a discussion on it and the CTD Nurse is sending me a list of herbal/alternatives I can try that won’t counteract my other meds or cause liver/kidney problems. I will defo try these ones for sure. Thank you so much for your reply. Have a lovely day too. 🥰

[Bkart]

Anibeth

I use a GTN spray for my Angina but only if I am having an attack or to try and stall an attack. Thankfully at the moment I don’t have to use it very often. I have never heard of GTN patches and am now wondering if one of the reasons my Raynauds has got worse is because I am not having to use the spray very often and it was helping the R without me realising, if that makes sense.

I think most people using a spray eventually get used to it and the headaches subside. I just wondered if a spray would have the same benefits for Raynauds as a patch but because you are not having a constant dose this might reduce your headaches. I’m not medically qualified

so you would need to speak to your GP or consultant and put this hypothesis to them. It may be that your body gets used to the drug and the headaches will eventually subside anyway. Thanks for your post as I’m now going to look into GTN patches! I’m new to this and I think apart from SRUK I have learnt more about Scleroderma and Raynauds real time than anything on the internet, amazing. I just love how we can all understand and help each other. Good luck, hope you can find a solution.