I have systematic scleroderma and Raynauds
I had my first covid vaccine 8 weeks ago and the day after I was wracked with pain ( light I’d been in a boxing ring)
I was hoping my second one yesterday would be fine ...but no , never slept all night , got up at 6 am because my joint pains were so bad . Has anybody experienced this and what did you take for the pain ? Thanks 🙏
Hi, I went to my local chemist who was really helpful. I took panadol and in-between 2 hours after one ibuprofen. It helped, and I had to take them every 4 hours as like you I was in a lot of pain. It will subside, mine after 10 weeks has and I never thought it would. Find your friendly chemist and see if they say the same or come up with another alternative as I know some people do react to ordinary pain medication. The sleeping at night, you could try nytol that contains valerian that also worked for me.
I do hope you get better soon
🙏🌷
Thanks for your reply , even my rib cage is aching , I’m on no pain relief from doctors, even without the after affects of vaccine , I’m finding my joints are painful whilst trying to sleep , I wonder if amitriptyline is worth a try for joint pain and sleeping , what are your thoughts ?
I think I would consult your GP or a chemist as I am not qualified in medicines. That sounds like a bad reaction and if it were me I would definitely talk to my GP because not only for advice on what pain management to use but to get it noted that you had such a terrible reaction. Sorry I cannot be more helpful
Yes both my covid vaccinations caused a flare up of symptoms, giving me increased inflammation and pain and exacerbated my fatigue levels for about 4 weeks each. It wasn’t a great experience but I’m happy to say I’m out the other side and relieved to think I have some sort of protection from this horrible virus. I just used paracetamol and ibuprofen. Working in healthcare myself I’m hopeful that long covid is going to open some doors to research into the effects of chronic illnesses like ours that cause ongoing pain and fatigue, that until know we have basically been to just to get on with!
Hope you feel better soon xx
Yes me too. My feet in particular were throbbing. Hips too. Unbelievable pain. I actually found 2nd one worse as well. I’m about 3 weeks after it now. Quite a few of my scleroderma symptoms have came back. Hopefully just short term. Altho my lung function tests showed a decline last week even altho they’ve been steady before n weirdly my sats n pulse were through the roof. The consultant said it was like I was hyper ventilating! All very strange. I’ve been taking paracetamol n codeine. Now just at nights.
ok you want pain relief i have just the thing for you. WILD LETTUCE EXTRACT mt rose herbs, ebay i take it for scleroderma, lupus, fibro pain, works great let me know how it works for you. also crush a twig of rosemary under the tap of warm bath crush it the smell will send you into a peaceful sleep. love julie
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