eosinophilic fasciitis

[knoppia]

Does anyone have experience of this condition? I've been told that it is a component in unclassified connective tissue disease - in other words, doctors aren't sure what it is that I have - I certainly have morphea and scleroderma plus this. Can anyone add any information on this? Has caused the skin on my lower arms to have no collagen layer. The skin is kind of stuck to the bone and doesn't move at all, plus pronounced veins.