Hi I'm a 57 year old male with CREST Raynauds overlapping other interconnective tissue disease's I have recently having a lot of problems

[Psg83]

Hi I'm a 57 year old male with CREST Raynauds overlapping other interconnective tissue disease's

I have recently having a lot of problems with stairs . getting up from seating and laying down to sleep .My wife as been looking on line and come's up with I have all the symptom's of polymyositis . Can anybody tell me if these ailments are common

Thanks Pete

Just a update On How I'm getting on CBD oil hasn't helped me solve my Problems

Others say it as helped them / I'm taking some advice from one the replies to my

question . That it is a problem with circulation hoping that my rheumatologist will

advise me in the next day or so .

Pete

[Hidden]

Hi Pete.

Have you thought about using diet to help your symptoms?? Lots of information online. I’ve read some of your previous posts which say you feel more anxious when you have no control over your symptoms. I felt like this when my son was diagnosed with Mixed Connective Tissue disease at the age of 10. He was very ill on diagnosis -started on steroids, methotrexate, hydroxychloroquine, nifedipine. Since changing his diet he has come off all medication and I feel like we have regained control! There’s lots of information online about autoimmune diets - just use google. I can send some links if you are interested.

Hope this helps.

[Psg83 in reply to Hidden]

Hi LizzyCee

Thanks for your reply . I've seen my GP Today . He as started by blood test for any other causes , Whilst waiting for Results I will take a look at information online about autoimmune diets

Thanks Pete

[SheepJane]

Which drugs are you taking for circulation? I had similar problems when I took Coractin (sp?) and another circulation drug for Raynauds. I stoped taking the drugs and the symptoms went after a few weeks

[Psg83 in reply to SheepJane]

Hi SheepJane

Thanks for your reply . I have tried reducing Meds in the past . But the inflammation along with other things became worse . My Gp as started by blood test for any other causes .

Hopefully find the cause .

Thanks again Pete

[Goldyukr]

I have myositis (an undefined type) and yes, those are symptoms of polymositis unfortunately. You need to see a doctor right away - just in case - as it can progress quickly for some. I see a neuromuscular specialist (in US) but many patients see a rheumatologist. Wishing you the best.

[Psg83 in reply to Goldyukr]

Hi Goldyukr

Thanks for your reply . I've seen my GP Today . He as started by blood test for any other causes ,

Thanks Pete

[NewbieAP]

A low dose of Fluoxetine (10mg) has helped my Raynauds symptoms, luckily. I know your situation is overwhelming, but try to get more answers from docs, as google can really increase anxiety about it all, which doesn’t help.

[Psg83]

Hi NewbieAP

Thanks for your reply I have my GP today and blood test for any other causes are the starting point . Before any other Meds

Thanks Pete