Experience with Systemic Sclerosis and acupuncture?

[hunkyd0ry]

Hi all.

I have systemic slerosis with all the usual CREST symptoms, with the most problems occuring in my hands.

My fingers are puffy and swollen, stiff, suffer from Raynauds and occasionally suffer digital ulcers. Currently I am on Sildenafil (25-50mg per day).

I am thinking of trying acupuncture to help with the blood circulation in my hands and would be interested to hear if anyone has had any experience with that in relation to Raynauds / SSc.

Thanks

[Sclero]

Hello HunkydOry. I suffer with Diffuse Cutaneous Systemic sclerosis (Scleroderma). Also Raynaud's. So my whole body is at war - intense pain swollen and stiff hands, legs feet and back. I have been having acupuncture once every 2/3 weeks for the last 4 years. I have to tell you although it doesn't cure my whole body feels almost normal albeit for only a few days.

[Sclero in reply to Sclero]

So

[linda-l]

Hi! I'm at present on my second day of Iloprost, which is my third treatment in sixteen months. I have to say, when I was having regular acupuncture treatments, my Raynaud's was much better ...... for me (as we're all individuals with our battle against our fragile immune systems)

I plan on resuming when I get out if hospital.

Hope this helps

[Bec9680]

The problem is the immune system is trying to fight something foreign in the body & is losing and gets confused. You have to find doctors that will test for root cause for autoimmune. Most the time its mycoplasma bacteria I have systemic scleroderma and I tested positive for mycoplasma pneumonia. I’ve been on tetracycline antibiotics for about 8 months & symptoms are improving greatly! I’m able to go back to work partime. Please go to roadback.org to find a doctor near you and read all the success stories it’s amazing.

[lovelybutterfly]

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