Oxygen

[Susanissufferingtoo]

Hi all, Is anyone here on oxygen? I also have copd fibromyalgia and just got diagnosed with Raynulds and scleroderma. Had testing done waiting on results as to see if Scleroderma is the reason I'm on oxygen already when I'm only at stage 2. I'm on no meds as p f 1 day ago. So far everyone pill i get my body reacts bad to them.

[Hidden]

Hi, I'm on oxygen, I only have scleroderma, diagnosed in June last year, but it has affected my lungs very badly so was started on oxygen straight away.

[Susanissufferingtoo in reply to Hidden]

Wow! I'm sorry.. I believe that's why I'm on too. I'm looking for a cure i see some people get better with time. Others don't. Prayers for all of. Us. Thankyou for the reply

[treesie]

I am on oxygen too from pulmonary fibrosis in lungs from scleroderma. I have a lot of scar tissue and interstial lung disease. I tried mycophenolate but too many side effects like constipation and thrush and upper respiratory congestion.

[Susanissufferingtoo in reply to treesie]

Prayers treesie

[Susanissufferingtoo]

I know how you feel 😢