Iloprost treatment - twitching side e... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

11,131 members5,646 posts

Iloprost treatment - twitching side effect?

BertieB_280616 profile image
3 Replies

I underwent my Iloprost treatment and suffered from a severe headache and nausea.

I did experience a lot of twitching. I asked a nurse and she said this wasnt listed under side effects.

Has anyone else experienced twitching?

Written by
BertieB_280616 profile image
BertieB_280616
To view profiles and participate in discussions please or .
Read more about...
3 Replies
fairy56 profile image
fairy56

Hello Bertie, how many days treatment did you have, and on what day did the headaches/nausea start and the twitching?

creditcrunchie profile image
creditcrunchie

Hi Bertie. I did Illoprost treatment for a number of years and I remember the headaches, the nausea and what you describe as twitching which in my case was an overall skin crawling feeling, I was given the chance to try Siladifil whose common name term is Viagara and in my case I feel much happy doing this twelve months of the year so I pass now on the Illoprost treatment. I guess like anything that combats this illness you have to do trial and error, But it is good to report that I have not had any ulcers for a number of years so something is working. Regards Credit Crunchie.

creditcrunchie profile image
creditcrunchie

PS sorry but I also have a daily dose of nifedipine aka Adalat which is slow release so the combination really helps. Credit Crunchie

Not what you're looking for?

You may also like...

Iloprost - side effects

Hi there, can anyone who has iloprost tell me if the side effects last just while the drug is being...
rosie_girl profile image

Iloprost

On Monday I had my first Iloprost treatment and within a couple of hours my joints started ache...
AMDP profile image

ILOPROST

Hello everybody, I hope you are all as well as you can be. I have been busy this week, volunteering...
fairy56 profile image

Iloprost

Hi, does anyone have side effects from Iloprost that goes on for weeks and weeks? Also, has anyone...
Jacko37 profile image

ILOPROST

I am due to start Iloprost Treatment in 2 weeks time. I suffer from severe Primary Raynaud's. I...

Moderation team

See all
JillWillSRUK profile image
JillWillSRUKAdministrator
AnnabelSRUK profile image
AnnabelSRUKAdministrator
Chicunique27 profile image
Chicunique27Administrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.