Just a little hello: I signed up to... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Just a little hello

Patchparker87 profile image
4 Replies

I signed up to this site because I’ve started couch 2 5k.

I was delighted to spot this group. Im 30 and have suffered with Raynaud’s for as long as I can remember. This year has been the worst so far with chilblains and painful swollen fingers.

So hello to you all 😁 x

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Patchparker87 profile image
Patchparker87
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4 Replies
fairy56 profile image
fairy56

Hello Patchparker, welcome to this wonderful site. We are a friendly group of people, always here to listen and help if we can, take care. Smile and wave, smile and wave.

Intimeslikethese profile image
Intimeslikethese

I rotate, switch or add on many different creams. For now, I've found a hand cream with moringa in it. I love it. However, I've not experienced it with broken skin. I also used a Prossage Massage Balm for soft tissue therapy with dwarf pine oil (Amazon) along with my Conair Hydro Spa (Walmart or Amazon) when I had tiny tears on my wrist. Amazingly quick response. I heard on Dr. Oz that flax seed oil daily eases fibromyalgia. (He suggested in salads or cooking). I wonder if it would help Ssc. Feel better.

Intimeslikethese profile image
Intimeslikethese

Visit medicalnewstoday.com and search for Chilbains Treatment. It offers to check with doctor for cracked skin and for a mixture of a weak iodine solution and friar's balsam. To prevent, exercise (check with doc to what extent) to promote good circulation.

Tollie profile image
Tollie

Hello I have had reynauds since I was in my twenties but I think I have had scleroderma all my life but I didn’t notice till I was sixteen. With the reynauds I had severe swelling in my hands and feet. But the scleroderma it affects my whole body. Nice to meet you they have a lot of good questions and answers on here even though I am in Florida I have the same symptoms.

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