Chest pain with numbness in arms - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Chest pain with numbness in arms

Ncoff profile image
Ncoff
•10 Replies

Chest pain and numbness in arms, anyone else get this. Another blood clot ruled out but feel so under the weather 😔 been told it cud he inflammation but only given pain relief which ain’t helping

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Ncoff profile image
Ncoff
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10 Replies
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cobr1 profile image
cobr1

I have the same symptoms, the Dr says take pain killers and things will settle down !

Ncoff profile image
Ncoff• in reply tocobr1

I live on painkillers I don’t think they even do anything anymore no wonder my liver is in it’s way out

Says who? GP or Rheumy or Professor so and so?

It's a little like, "have some dummy, here" to a starving baby. Ignorance amongst medical profession is flabbergasting. But it seems this goes around ALOT.

Ncoff profile image
Ncoff• in reply to

I get this a lot from my rheumy I’ve been telling him for ages about the numbness but it was just ignored

cleoshome profile image
cleoshome

I have crest form systemic sclerosis scleroderma. It caused HEART FAILURE in 2012, 4 years after diagnosis. I have been in hospital ICU 3 times and more with pericarditis ,( fluid buildup around heart,). I have to take Potassium Chloride every day for the rest of my life. I also have nitroglycerin for angina( chest pain) can only use twice, if no relief go to hospital ER. However, when you are having any chest pain, or pain in either limbs, tightness, can even be in your jaw, shortness of breath you need to go to ER. If that hospital or GP Doc says it's nothing, go to different hospital.

Ncoff profile image
Ncoff• in reply tocleoshome

All tests showed up normal though, go was concerned it could be sumthing though

cleoshome profile image
cleoshome

When you develope heart issues with our disease, which I have a permanent diagnosis of Congestive Heart Failure. You will find you have such fatigue, shortness of breath, 0 tolerance to stress ( if that's possible, it's the disease that keeps on giving). I tire trying to change the bed, everything seems so hard. And I'm so damn tired of people saying " but you don't look sick".

Ncoff profile image
Ncoff

Thank u

Someone else commented on another hub, "seronegative" does not mean you are fit to go or you are well. I never had the raised inflammatory markers even during the flare when there are clinical signs. However, this sometimes gives Rheumy, who is not thinking, clearly and quite frankly, too lazy (?) dealing with his rheumy conveyor belt, thinking about his lunch or dinner..takeaway or something else.. Sexism in rheumatology has also been discussed.

There has been active discussion on the book: Do No Harm’ author Maya Dusenbery. This topic comes up quite often.

cleoshome profile image
cleoshome

My markers are also negative, however it is all visable, consistent and progressive. So my diagnosis by my Regular Doc is the same. Congestive heart failure, crest syndrome, sjogrens, chronic pain syndrome, Raynaud's, fibromyalgia. And hypogammaglobulinemia ( low immune system, can get pneumonia 10 times a year) I go for monthly infusions IV for gammunex. I also have almost non existent veins as the scleroderma scarring has made them like concrete blocks.

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