Hi everyone, I was diagnosed with scleroderma sine scleroderma last July with only lung involvement. My question to you all is has anyone else had numerous blood tests where the scleroderma indication was conflicting?
I have now had 4 tests done, at two different hospitals and only the second one showed a strong positive for the SCI70 antibody, the other 3 were negative. 1 test was done at Hammersmith, the other 3 at Bournemouth, and were all done using the most reliable method, I'm told. The positive test was done first, at Bournemouth, a few weeks later was the one at Hammersmith, then 2more tests in December and February at Bournemouth. Because of this and no other signs of scleroderma there is a question over the diagnosis. I have been referred, this week to professor Denton at the Royal Free. Does anyone have a similar experience? My lungs are really bad and it seems like all my doctors, rheumatology and thoracic, both are really good, Are unsure about treatment if mycophenolate doesn't stabilise me.