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Scleroderma & Raynaud's UK (SRUK)

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Hot hands at night

Wendy60616 profile image
6 Replies

Hi all - I have Raynaud's and recently started having hot hands at night. The heat is so intense it keeps me up. I run cold water on them and that seems to help a little, but the relief does not last. Is this related to Raynaud's? Any suggestions?

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Wendy60616 profile image
Wendy60616
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6 Replies
Jmrose profile image
Jmrose

Curious...I have never experienced that and I have had it for year's. Is your doctor able to give you any info about it???

Wendy60616 profile image
Wendy60616 in reply toJmrose

Thank you for replying. I have also had it for years and never had this experience.

LucyJean profile image
LucyJean

Hi Wendy, we have had a few people on here who have had similar. There is a condition called Erythromelalgia that is typified by burning hands and feet. I am including the link to the NHS website so you can have a look and see if it fits with your symptoms. I would have a chat to your GP to get it investigated.

nhs.uk/conditions/erythrome...

All my best

Lucy x

Wendy60616 profile image
Wendy60616 in reply toLucyJean

Thank you for the information. I will be seeing my GP in the coming weeks. I am hoping it isn't anything serious.

Magsterly profile image
Magsterly in reply toWendy60616

Yes. I’ve had Raynauds for about 15 yrs. For the last year it’s been hot hands and feet at bed. Also my fingers are throbbing.

I simply ignore it. The doctors are totally useless. They do t know or understand those disease. Unless you don’t mind a variety of drugs being suggested and you want to take them.

I wouldn’t worry or think about it.

That’s just me tho.

Wendy60616 profile image
Wendy60616 in reply toMagsterly

Thank you for replying. I definitely don't want to take medication if it can be avoided. I will try some natural remedies if I can figure out what works.

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