Flu Jab: Hi All, Has anyone NOT had the... - Scleroderma & Ray...

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Flu Jab

naila_007 profile image
10 Replies

Hi All,

Has anyone NOT had the flu jab? and got the flu while on immune suppressents?

The thought of another needle just makes me blah :(

I am on my mycophenolate 2g a day for the last 5 months.

thanks,

Naila

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10 Replies
cowhide profile image
cowhide

The flu jab needle is so fine you hardly feel it!

I'd imagine anyone who got the flu with a compromised immune system probably can't answer this :S

AnnieMc profile image
AnnieMc

Hi there, I have yearly flu jabs, but still get the flu. Someone only has to sneeze near me and I get a cold which goes straight to my chest and takes weeks to go away, even with the help of of antibiotics. Don't really know if they work. Take care

rosella24 profile image
rosella24 in reply toAnnieMc

Do you get "real flu" or a bad chest? Real flu is a dreadful illness that can leave you very weak and debilitated. A bad chest is bad enough but you'll know the difference if you get real flu. You can be bed ridden with a high fever and awful aches and pains and it can leave you feeling rough for quite a while. You should carry on with the flu jabs if you have an auto immune illness.

rosella24 profile image
rosella24

I think you'll find that all the medics will tell you it's very important to have the flu jab as you have an auto immune disease. The needle is so fine you won't even feel it! Go for it!

naila_007 profile image
naila_007 in reply torosella24

Hi Rosella,

I had the flu jab Monday just gone and u were right the needle was "fine" :)

But now i do have a bit of a cold - but i was getting that before getting the jab. Am assuming cant take stuff like night/day nurse - means hot water/lemon and honey.

naila_007 profile image
naila_007

thanks for the feedback :)

Gdonnelly profile image
Gdonnelly

I got my flu jab last week & Have had no problems with it - I get it every year - better to be safe than sorry

Suzyannayoung profile image
Suzyannayoung

Hi there, I asked my specialist the same question last Friday. I am having a flare up last few months so medication including steroids , immunosuppressants is at high dosage , he said it was still best to have it. Am booked in for 8 November as have missed all the flu jab open clinics. Hope this helps you, and needle really doesn't hurt , 👍

Suzyannayoung profile image
Suzyannayoung

Hi everyone, have got raynauds, diffuse Scerledema , polymytosis , osterperosis , Barrett's disease , for at least the last five years, and as we do I manage to adapt to the changes and have for most of the time been positive. Now this has so upset so much, I have been having a flare up since June and medication had been increased. After a stable lung function test in May I was also sent for a ct scan , results last week showed white round shapes ( fibrosis ) . Am being sent for another lunch function test, waiting for appointment. I have been feeling a little breathless lately and found myself taking little gasps!!!! Very strange. Do you think that we can get a good lung function test if there's a change in the lungs, or could all of this appeared since June. I have never been off steroids and immunosuppressants in the last five years , just a lower does while being stable . Doc put me on sidnerfell ( not how it's spelt I know ) which I've not started yet, he said to help with a ulcer under my fingernails and 4 other pitted fingers. I've come away and read everything about lung involvement and am now terrified, see him in 3 weeks . Any suggestions on what I should be asking , I know it can't be reversed but can it be manage do you know. Would be comforting to hear from you if your in similar situation , many thanks 😊

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