Scleroderma & Raynaud's UK (SRUK)
7,039 members3,344 posts

Pip

Hey all I am waiting results for pip claim, has anyone else claimed?? I what were you awarded???

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What is a pip claim

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Disability allowance support I believe?

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Thank you

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Personal Independence Payment...or....how difficult can we make it for someone who needs it to actually get it. !

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I was awarded pip but refused originally.It actually took 10 months as i had to appeal.I received the enhanced rate for daily living and standard rate for mobility which was back dated to my application .

Sue

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Glad u got something in the end thank u x

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Hi there, had the same experience as sue.58. I appealed and got the same rates as her backdated. Don't give up if your first application fails. All the best.

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Hi

This is my third time applying for PIP and been turned down again. Hope goes better for you

Take care x

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Why have they turned u down? How bad is your illness.. in my husbands case he has very limited movement all over severe skin tightness no movement in hands lips have shrinked no has to eat soft things and can't imagine the state of his teeth as he can't open to see a dentist. I'm just so confused as to why we've had no reply yet? But on the other hand he never sees his doctor only his consultant once a year and his iloprost once a year so they may think he's just fine I have no idea....

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I am like you, waiting to find out if I can get it! Fingers crossed for both of us.

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How annoying!!!! We have been waiting for a desision for around 10weeks now so nerve racking!! Fingers crossed he gets it husband hardly has any medical evidence as he only sees his consultant once a year has given up on his gp. Have heard of so many declines but u can clearly see he is not well. Thanks again guys x

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How badly affected are you all by Systemic Sclerosis? It has affected my lungs quite badly and my joints are swollen and painful...I also have arthritis in my knees and hip and ankle...also my spine is bending with scoliosis....pain is awful on a daily basis....so I get disability allowance at the higher rate but not applied for PIP as not applicable to me because of my age...67...but think anyone who has Ssc and is really badly off with movement etc. should definitely be receiving it...and if turned down for it then should apply and apply until you get it. x

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Kc, phone them & ask for a copy of your report, they have to supply 1 if you request it. It will give you an idea of what award you may receive. 10 weeks seems a very long time to be waiting for a decision to be honest. I had mine 2 weeks after my assessment.

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Thanks Hun I'm so confused... How bad is your illness.. in my husbands case he has very limited movement all over severe skin tightness no movement in hands lips have shrinked no has to eat soft things and can't imagine the state of his teeth as he can't open to see a dentist. I'm just so confused as to why we've had no reply yet? But on the other hand he never sees his doctor only his consultant once a year and his iloprost once a year so they may think he's just fine I have no idea.... he's not a doctor person just given up as there's no cure not good in the case of pip though

Will call them Tomo Hun x

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Hi& Kc, I am more affected by my MS & RA to be honest. Phone them today, request your report & ask them why it's taking so long, good luck x

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Hey thanks Hun have requested the report and they have made a desision but have not uploaded on their system so will have to wait to see what they say....

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Good luck, really hope it's good news xx

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I got the care rate standard but hope to get the mobility part soon.

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A good site to join is Benefits and Work, this site helps you with PIP claims or appeals.You pay an annual membership fee to get full access, but we'll worth it.Good luck.

benefitsandwork.co.uk

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It's not your illness you are awarded payments for but how you are effected daily by the condition and mainly by the side effects you suffer from the medications you take for the condition.

They're not allow to tell you not to take your prescribed meds for your condition, so the side effects seem to be how you get awarded PIP.

Hope this helps

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Hey guys sorry for late reply so have recently been awarded with the standard rate daily living but checking the points was only two away from higher rate.

Wasn't awarded with mobility. Have since been to see consultant who will write a letter explaining in depth about my condition. Wasn't able to send this information in before so will hope this will bump up the points in regards to the medical evidence. Just glad was awarded something

Thanks guys for all your previous comments

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I applied for pip got turned down should I reply just got rayunards

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It all depends on how bad it is for you. Does it stop you working? Does it stop you doing normal daily things? Contact citizens advice and see if they think you should reclaim. In my case my illness is very severe and I am genuinely unable to work (get out of bed most days)

I hope they can help you

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I do work,only 12 hours a week I find when weather really cold my feet are painful walking and my hands aswell my mouths painful aswell I ll try citizens advice again thanks kc_1411

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If you think u deserve the help then definitely reclaim all the best!

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Yes, kerp going until you get it. I did!

I couldn't handle cold veg and cut it with a sharp knife without it being dangerous (obviously to us with Raynaud's)

Also when outside walking getting numb toes was causing me to stumble and fall because of my toes going numb.

Don't give in, that's what they hope you do.

Goid luck 🍀

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Hope you don’t mind me asking what was you awarded for pip

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For just the Raynaud's I was awarded lowest living and care component.

This was because I couldn't safely prepare and cook a meal safely for myself.

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Thanks x-woman I ve reapplied for pip waiting on appointment to get reassessed again let you know how I get on x

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Thanks kc_1411 and X-Woman I ve replied for pip so fingers crossed I get it waiting on form coming I ll let you know how I get on x

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Do not say 'when the weather is cold'. They won't take into account seasonal changes. Remember stress also can cause Raynaud's attacks as does a change in temperature, so play on those factors rather than cold weather... Like taking something from the fridge, handling veg to prepare to cook etc.

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Kc_1411 applied twice got turned down again hoping to try and reply I ve got raynauds good luck with your claim x

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