I am new to this site. My mum has been diagnosed with diffuse systemic sclerosis. Her symptoms started with Raynauds in December 2016, it has now progressed to very severe SS in her feet, hands, limbs, skin across her joints, torso, face and hips.
She is struggling massively coming to terms with this condition, and so are the rest of the family. She is currently in a denial phase, refusing to know her limits and getting frustrated and upset with things she can no longer do. She keeps saying it is going to go and whilst I want her to be hopeful, from what I have read this is a life long chronic condition.
Does anyone have any suggestions on how they have dealt with living with scleroderma in the long term, as she is really struggling and emotional and I am at a loss as to how to help.
Thanks E xxxx