looking for help: haven't been... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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looking for help

timg50 profile image
7 Replies

haven't been diagnosed yet but have all the symptoms of scleraderma and raynauds also my grandmother had scleraderma

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7 Replies
cowhide profile image
cowhide

Have you been to a medical professional for a diagnosis? Either of these conditions can cause not only lifestyle difficulties but major health issues - gangrene with Raynauds, a whole range of potentially life threatening complications with Scleroderma. The earlier you are into a monitoring routine the better. We are all here to help with advice and support but it's not clear what help you are requesting.

zenabb profile image
zenabb

We are not sure that scleroderma is genetic. Have you seen a rheumatologist.

gowergirlie profile image
gowergirlie

I was diagnosed almost 20 years ago. Because of me, my gp saw the signs in my mum who subsequently was diagnosed with SSc around 3 years ago. It's not unknown for family members to have it.

timg50 profile image
timg50

has anyone else been put on lisinopril and developed raynauds

Discontent profile image
Discontent in reply to timg50

Discontent@gmail.com I have been on Lisioipril for many years but was not diagnosed with Raynauds (?) and 2 other conditions until recently. I am not sure if this is the cause as I have HBP, I hope not. I will ask my RA on Tuesday May 31-2016 and will get back with you for the answer. Sincerely.

timg50 profile image
timg50 in reply to Discontent

I got to the point I could barely walk before I got off it only after two months still suffering from raynauds but getting better after starting low dose Cialis and using a vaporizer several times a day to keep lung clear

Discontent profile image
Discontent in reply to timg50

discontent@gmail.com Hi. I was also on Viagara, body rejected it. RA said that there is no connection with Lisinopril. Do you have asthma? Please get better. I am still dealing with infected left digit, new broke right foot, severe weight loss. RA saying internal worry of not letting go of issues, causes symptons that can be related to Raynauds'. This is why I call myself Discontent. Doctors really have no absolute answer. Hang in there.

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