newly diagnosed with crest syndrome help - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

10,987 members5,511 posts

newly diagnosed with crest syndrome help

samlewis67 profile image
2 Replies

hi i am new to this .it is may now and i can honestly say my hands and feet think im in the artic ! the pain can be unbearale . the trouble is when it is hot they swell alot ,i can cope with all the other strange symptoms but please not my hands any advice would be so appreciated thanks x

Written by
samlewis67 profile image
samlewis67
To view profiles and participate in discussions please or .
2 Replies
zenabb profile image
zenabb

Do you have any treatment for your Raynaud's. Do you see specialist, a rheumatologist. You don't seem to have any relief, poor you.

Cricketta profile image
Cricketta

Unmanageable pain is my reality also. Home remedies , ice & heat , hot baths, pain rub & anti inflamatory foods(tart cherries) , spices(turmeric) are my practices now . I haven't any ins. Over the counter meds R 2 expensive.

Not what you're looking for?

You may also like...

Help with crest symptoms

Hi everyone, My name is Cathie. I was diagnosed with crest 5 weeks ago. The results of tests are...

Recently Diagnosed with CREST syndrome

I have recently been seen by a rheumatologist, and was told I needed bunch a blood work they first...

Crest Syndrome

Does anyone else have dizzy spells 😒 I was in St James's last week - dizzy spells and vomiting Dr...

scared newly diagnosed

I’m afraid of this diagnosis it has been two years of constant back and forth to many doctors and...

Crest Syndrome

I have Crest and my hair is breaking off does anyone know if thats possible? thanks