Oral problems : I have been diagnosed... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Oral problems

Lesleym76 profile image
6 Replies

I have been diagnosed for about two years with scleroderma and secondary Raynaulds . I have had a full set of dentures for over 20 years but recently I been having problems with sore gums and sore lips just wond if anyone else has experienced similar is it even connected to this illness? 

Thanks lesley

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Lesleym76 profile image
Lesleym76
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6 Replies
fairy56 profile image
fairy56

Hi Lesley, I keep getting mouth ulcers and  a sore mouth.  I am being referred, to an oral medicine department after seeing a doctor on the maxifacial unit. So I suggest you try to be referred by your gp. Good luck.

Lesleym76 profile image
Lesleym76 in reply tofairy56

Thank you I will say to the doctor just wasn't sure if it could be connected 

marilynmcl profile image
marilynmcl

Yes, same here....I use a daily rinse of Corsodyl  mouthwash to help with the ulcers but my lips get very raw and sore on the inside...like I have been 'chewing' on them but I haven't. So I would say -in my opinion- that it may be connected to the Ssc. 

Lesleym76 profile image
Lesleym76 in reply tomarilynmcl

Yeah that's the exact same as me I've been using the mouthwash to thanks 

jessieAla profile image
jessieAla

I went to a new dentist last week.  Cleaning my teeth, the hygienist asked, "You have sjogren's don't you ?"   The dentist later gave me a lesson on the effects of sjogren's on teeth and mouth.   Briefly, the sjogren's creates an enzyme (?) that mixes with any sugar or sugar substitute to damage the enamel.  It also causes sore gums and inside mouth tissue.   He instructed me in a 5-step (!!!) cleaning that involves specific OTC mouthwashes,   water-pic, brushing twice, once with a prescribed toothpaste.  This must be done every night !   I've also discovered an OTC mouthrinse, Colgate Paroxyl Sour Mouth Rinse. for whenever the sjogren's flares.   Aren't we the lucky ones ?  

christef profile image
christef

Jessie Ala whats otc stand for? I have sjogrens, Raynards, LS, ibs, heart issues etc

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