I've had scleroderma with lung fibrosis and raynaulds for 14 years now. I've managed to get on with life and my condition has been monitored and stabilised for most of that time. For the last 4/5 months I have been more and more breathless, extremely fatigued and struggling more than ever before. Lots of chest infections etc. I have hardly been out since Christmas as I find getting ready and out walking so difficult. Is this a bad flare up of my condition? It's never been this bad before. Anyone else experienced this? I have asked to be referred back to Royal free, but awaiting appointment.
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