I have today received a copy of a letter sent by Thoracic consultant to my Rheumatologist and Prof Denton, in which she says she suspects I may have something called "PULMONARY VENO-OCCLUSIVE DISEASE" and silly me, looked it up, now terrified. The letter also sates that my FEV1 and FVC are 'well preserved' but transfer factor is down at 36% and does not correct.
I also have a 13mm 'nodule' on my lower right lobe of my lung.
I am now absolutely terrified, so anyone out there who can perhaps put my mind a little bit to rest, please do.