Song title for the Scleroderma and Ra... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Song title for the Scleroderma and Raynauds experience ;)

living-the-dream-ssc-ray
living-the-dream-ssc-ray

Hi everyone,

since I try and bring the party into my eskimo cave at the weekend I was thinking of a song to describe the Scleroderma and Raynauds experience and came up with the children's song:

'Head, shoulders, knees and toes.... and arms and ears and mouth and nose...'

For understandable reasons ?!

I would love to hear of any other suggestions ? ;)

3 Replies
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What a good idea. Lets sing.

haha ! beats crying hey ? ;) x

Haha. Love it. X

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